Cystic Fibrosis Foundation Video Podcast: Frank Deford

[rollo131]

I know a guy who's about 37 with cystic fibrosis and shows no signs whatsoever of ill health. Obviously there's been great progress fighting this disease

[yanners1976]

i understand your pain and agony mr deford. I also Had 3 children with cf.One died at birth(miranda),one daughter died with this disease at 2.5 years(kimberley),and Kristin died at 15 years old.Not a day goes by,that i dont think of all of them,and miss them.I have ur book and the movie.God Bless u.

[enchantress7]

I watched this movie when I was a little girl on television back in the 80's. I can't tell you how much this movie touched my life. I read the book as well. I feel very connected to this disease and foundation thru Alex!! Thank you for sharing your story

[Kiraskye1128]

i have the book and a long time ago i saw a movie based on Alex's life. Alex's story realy got to me.

[MeBenHalpin]

I heard there was film based on these events couple of years after poor little Alex died, does anyone have it to upload please, as i would like to learn more about what happened.

[MeBenHalpin]

This was very sad story, can't imagine what this poor man went through.

[oscare76]

Mr, Frank deford is gret to see you and see this kind of video on you tube, i contacted you like 5 years ago when i sent you a email from mexico telling you how the alex´s movie caused in my person, and i have to say you again how alex impact me when she was a little and try to figh against that sickness , the stronge about alex, the movie make me cry really i send you a hello from mexico city.

[ayaamaya]

Frank i read your book as a small child and i cried for weeks~ i had a baby who tested positive for CF, they did follow up test came back neg, did another test it was positive 1 last final test and it was negative. that was extremely scary for me. I am looking for the movie currently as ive never seen it. blessings, cf will always be one of my fav charities to raise awareness for.

[lauramariemoore]

Your daughter's life was an inspiration to me (and my cousins), Mr. DeFord. We ALL fought for the right to name one of our children after Alex. My cousin (Mandy) won the battle and named her first born Alex. She's an angel...you (your wife and Chris) gave her her wings to fly home. I will always remember the LOVE you shared with us. Thanks and God Bless! ~Lori Marie Moore

[scootysiss04]

my sister died from cystic fibrosis and brother died too ur rite because they marked everyones life then people can mark in there whole life i miss and love them... i am tryin to raise money to

[SydNia2411]

i have this book its sad and just found out two girls on this show have cystic fibrosis

[Graffitti74]

I remember faintly watching the movie in the 80's. It was so painful to watch and what got me was the scene at her death bed. I'm curious if its on Video but also not sure if I would watch it again. Very heartbreaking.

[MeBenHalpin]

@Graffitti74 When did the film air, i would be interested to see it, sounded very tragic.

[FelicityFan85]

I read the book n high school and just reread it now (my mom had two copies of the book so I took one). . It's such an emotional book and Alex was a wonderful girl through it all.

[Qwalkson]

what does not kill us makes us STRONGER

[hopstop3721]

oh my god!!! i watched this movie when i was 7 and i was cryyyiiing so much, my mother was so concerned that i was so young and crying about such a mature story. but the story just touched my heart, and im so pleased to see the dad and see that he is speaking out after all these years!!! aaww, what a terribe, terrible disease!

[vamp666babe]

Thats a beautiful speech. My mum sometimes say that courage is blended in with my/the CF gene :D

[S888999333]

i really hope that Obamas new lift on stem cell research will provide a cure or sustained maintainance program for all CF people...my sister died of CF

[nelena17]

i loved the movie!!!!! we watched it in school a few days ago i felt so sorry for that little girl

[btwlu2]

that is a great book and i really started to thank about how much i am happy to be living

[Sweety1703]

i first saw alex's movie in child development in highschool about 8yrs ago. In an ironic twist thats how long it took me to find out how and where to get the movie. I wanted to get it for the memory of alex and also because I wanted to educate people on cf. The way that movie portrays alex is so sweet. I'll bet she was sweeter. I wish I could have met her. I would have been about her age and I most certainly would have remembered her. Anyways we need to take out cf! I support u & the cff!!

[MyAaliyahBaby]

Where did you find the movie. It has been a long time since I have seen it and I would like to own it as well.

[zenfit2]

My wife and I read Alex's story in 1989. We wept as it broke our hearts. A year later our

daughter Hannah was diagnosed with CF. We were terrified at first but decided to fight. We were told Hannah would have trouble walking up stairs by age 14. Today at 18, she runs varsity cross country for a 6A high school. This would not be possible without the work of the CF Foundation. Thank you and God bless all of you for your support.

[Doreen075]

I remember the movie, the part that will always stick w/ me is when Alex is dying and she says to her parents " which way do I go?"sooooooo sad!

[adventuregirl76]

The book will make you cry. She was such a sweet girl, and it was obvious how much he loved her and cared for. Absolutely breaks your heart.

[DMMP28]

That poor guy. I remember reading the book about her and wept. It was a very moving book. She achived more in eight years than alot of people achive in a lifetime.

[applejaxs88]

I never ment Alex or her Dad, but I love her. She is my hero. I did an essay on her in 6th grade.xoxo

[jkristina]

this is a great book. i read it as a kid then ordered it several years ago,.

[Russischespionin]

We got the book in the mail when I was 10 years old probably from the CF Foundation wanting a donation. I read it and didn't give too much thought to the disease. I recognized a few of the symptoms in myself but figured it was coincidence. A few years later when I was 17 and started to have problems, I actually was diagnosed with cystic fibrosis.

[cymbeli]

My daughter has the book. I had the movie on vhs when it aired the very first time but I have no idea where it is and my daughter has always wanted to see it. Someone said they'll send it free if you order something?? What and where??

[applejaxs88]

you can get the vhs free from the cf foundation, they do ask for a 10 dollar donation after you recieve the video to help defer costs.

[kadepangaea]

wow, i didn´t realize there were so many other people who saw and we impacted by that tv movie like i was. i was really little when i saw it but i remember it so clearly. i've read the book a lot of times too and think alex was an amazing person. we even played a make-believe game about her at recess. i´m going to look for the movie now on the website. thanks for saying where you found it. i´ve been looking for it forever!

[ergimi30]

I saw the movie "Alex the life of a child" when i was young i believe i was around 10. I felt so sad for her and her family. Im interested in finding the movie now.

[delise54]

Ever since I saw Alex's story, She has been my angel because I have trouble breathing. The movie changed my life. I too can't forget the root beer scene. Love you Alex.

[onehotmomoffour]

I am not a reader but this book touched me deeply! I remember reading this book at least 20 years ago. I also saw the movie when it came out on T.V. I was only 10 but it really impacted my life. Every time I hear Elton John I think of this movie for some reason. I also am unable to drink Root Beer with out thinking of the heart renching seen after Alex passes away and her Dad pours the Root Beer around the house. I still think about how brave and beautiful Alex was.

[Vamply]

OH MY GOD! Everytime I hear Elton John's "Your Song", I think about her too! I mean, EVERYTIME!

[westcredit]

omg thats true they are i have scoliosis cure of the spine and surgery for it can cause paraliyz for anywhere from the neck down and if you get through it without getting paraliyzed u are to a hero and just like cf no matter wat surgery or not you still have scoliosis! its sad and painful.

[crazyboxingfan]

I coach a "hero" on a youth soccer team who is 10 years old. I'm going to raise $1,000,000 in 2008 to donate to the CF Foundation. We must continue to help fund the research to find a cure. So much emphasis is on the Cystic Fibrosis itself. While I understand this, I want to put the focus on the cure. With the focus there...the cure will be found. It already exists, we just haven't found it yet!

[sexxyislander]

i watched this movie hella long ago sooo sad to take a young one so soon

[floridasirens]

I have the book. I cry everytime I read it. I saw the movie when it was on tv, and would really like to be able to see it again. Very sad, touching story!

[DearBeauty]

this movie was sad.

watched at school in life science.

[westcredit]

HOW CAN I WATCH IT ON YOU TUBE

[Vamply]

I remember that movie too. It was one of my favorites. Does anyone know where I can buy it?...Alex:The Life of A Child

[Muggle423]

I bought it off a cystic fibrosis website. They'll send you the movie free of charge.

[Vamply]

Thanks! I ordered it and they sent the movie to me in like 2 days! Still cried!

[littlevolcano]

So sad that Alex couldn't have been born a little later so that she would have had the new medical advances. Mr. Deford's book is one i've carried with me for years. I'll never forget Alex or her strength and grace. Thanks for sharing her story with us!

[nyprincess10001]

I watched the movie years ago....so sorry