Barbara's Story

[sellychelly]

I've been diagnosed with itp when i was 15 and now i am 18 i've been struggling with it throughout these past 3 years i've gone to many doctors and hospitals and so far im doing fine but till the day i haven't chosen any treatments i've been taking herbal remedies and they've been helping so far.and your vidoe and experience throughout life has helped me so much thank you so much for sharing.

[jaymeemb13]

im 13 when i was 11 i was having very bad nose bleeds, i was coming up n brussies and blood spots, but 1 day i had this massive brusise on my tummy it was massive!!! that day i had a nose bleed witch last about nearly 3 hours i started thorwing up blood soo my mum had to get a me staright to hosptail. they found out i had itp , now it it getting worse i have very heavey bleeding n i fainted and was in hosptail of about a week. my platlets are 2 at the momment .

[adnamateka01]

My daughter was first diagnosed with ITP at 18 months old, she went in to remission 6 months later then was diagnosed again nearly 1 year later. she went into remission again. we are coming up to the 1 year mark agin and are waiting to see what will happen this year. we were told she may never get it again or it could come back. it is such a mystery.

[Lia1291]

I was just diagnosed with ITP two to three months ago. I've gone through the steroids, IV-IG, and I think WinRho. This Thursday, I'm getting another weekly treatment called Retuximab or something like that... Ugh...

[danielleklocke]

This was wonderful to see. :) My name is Danielle and I am 16 years old and have been living with ITP since I was 3 years old. I have often wondered if having ITP would prevent me from having kids later in life... so it was great to see that it can be possible. Thank you for putting this video up. :)