Excellent song, you must be singing professionally for sure.
Ex Crohns sufferer here :) Suffered as a young child, diagnosed at 12 with UC, re-diagnosed at 13 with CD. Bowel resections, bowel removals, all the steroids etc.
You bring such emotion to your songs. I battled UC for a so called short 2 years, undiagnosed. I was diagnosed 16/10/10, by 6/11/10 I was rushed in for emergency surgery. Total abdominal Colectomy with ileostomy end. I'm 21. When my symptoms started, I withdrew completely, it was ruining my life. My restroom became my bedroom, it felt. When I thought I felt alone and different from everyone else before, I was wrong. The truth is, after this surgery, I've never felt so alone as i do now.
you have a nice voice! I sing too by the way...I have uc and im going through hell with mine right now, still trying to find something where the side effects arent worse then the disease itself...well anyways good luck to you and hope you feel better! :)
The quality of life is much better mate it took me 2 years of trying every med they had and nothing worked. I then got the operation and 2 months later i was 100% healthy go for it u wont regret it :D
i know what u mean.....after the 8th time on my Remicade i had an alergic reaction (anefelectic shock).... or however u spell that... and it was horrible. so i am not doing that again and no other meds work. i spent all last summer experimenting with all kinds of drugs and our last resort was remicade. it was seriously a miracle! i had sooo much energy and it felt like i was UC free.....so i decided to start running again and what do u know...i get a flareup and now i don't know what to do!!
From a fellow musician... Not to want to kill your musical muse, but, erm... I was able to conquer UC without surgery and (after a year) no drugs! Check out my first video (more to come) and join in the conversation.
PS: The song is pretty catchy, regardless of lyrics (I'm often more musical than lyrical in attention). Two comments: watch those vocal edits, and I'd rather hear your voice with a little less auto-tune, even if you feel the take isn't perfect. ;)
I'm sorry if it came across as if I was bragging. I meant to say there's hope: not everybody ends up needing surgery (and I'm not the only one who's been able to live symptom-free w/o drugs or surgery). If you want to know more, you can either drop me a private mail through YT or check out my videos. But since you already had the surgery, I'm guessing you're okay now w/o problems. I have to admit, I guess it irks me that people think, "surgery or drugs". I (and others) are proof otherwise.
i was diagnosed with UC about 5 years ago. i'm 17 now, and i have an astomy bad at the moment.. i've had my first surgery already. and i'm going on my second here in a while. i just have to lose about 30 more lbs, and i'll be good to go.. i really like your video, it really made me feel like there are other people out there who have been through what i've gone through so far. and i really am glad that you and other people out there make movies to help other people. take care :D
LOVED IT!!!! GREAT VIDEO! Thanks so much!!! I feel like no one really understands and it is so nice to have all off you and I needed that today~ flaring, unbearable pain/ desending belly woke me on and off through the night and today I feel like someone has beaten the sh@# out of my intestines not to mention the cutting FIRE~ hey, is there anything to sooth this pain? I am on pentasa and encort but out of the encort stuff for a while and I lost 20+ lbs
There are plenty of young people out there with this disease including me i got the operation when i was 19 theres a few facebook pages you should check out jus search for ulcerative colitis on facebook.
how long have you been on remicade? how does it work for you? me, it's been about 6 months and it helps a lot, but doesn't take all the symptoms away for sure.
There's light at the end of our tunnel. I've been able to control UC with Asacol and a really good diet. After I graduate, and get my own place, I'm gonna get a real decent juicer and improve my diet even more. No more Asacol after that. I wish you all a solid night of sleep.
Hey I have UC, have had it for 1.5 years now, been hospitialised twice, so far 2/3 of my bowel was infected, now just 7cm, just a question for people that have had their colon removed, do you end up with a bag or just like a fake parts replacing your colon? because i know about 40% of ppl who suffer from UC have to eventually have part of their bowel or colon removed. different doctors have told me different things, thought i would ask people who have gone through it :)
I feel for you. Do a ton of research. Go to the library, read tons of books, use the internet and talk to tons of people with and without UC. I've been dealing with UC since 2001 and tried things like meditation and a change in diet that seemed to work for me, but not for others.
i had ulcerative colitis for about 1.5 years before i realized my colon had to be removed. the remicade didn't work, but now about 1 year after the colectomy i feel much better and am so happy it is all over.
if you have uc is it ok to drink during periods of remission. i was about 16 when i got it but it was only there for a month then went away. was in remission for 3 years after now its back. i dont have it bad now but i know it could get worse any time. i ask the question above because i used to drink when i was in remission and nothing bad happened. if any of you drink does it make it worse for you during remission?
Sweet. I've got Crohn's, I got it when I was eight. But I'm mostly better now. Miralax! The number one prescribed laxative in America! (I dunno, other peeps were mentioning remicade...) ANYWAYS good video!
ulcerative colitis has a cure - surgery i had an illiostomy in 1999 and have recently had my rectal stump removed im a 38 year old male whos healing and on the mend. the only song that sticks in my mind is "THE RING OF FIRE" Good look to every one whos got it Never give up.
was diagnosed with crohn's when I was 11, in the childrens hospital for over a month, severe and occasional flareups for 5 years, was on remicade for 5 years and it helped a lot, stopped working eventually, humira didn't work, had ileostomy surgery last may 22, life is much better now
hiked mount washington a few days ago on a vacation to new hampshire, would never have happened when I was sick
Nice song man! I was diagnosed with UC when i was 14, im 18 now, i started remicade when i was i think 15? i had to get it every 2 months, but then one dose i took it and havent gone since, that was almost 2 years ago
nice song and video man :) i too had UC but tried remicade, never really worked so i went wit the operation lifes so much better now so jus rememeber u always hav a back up plan :)
Great song weird video though your voice reminds me of new found glory
jakejohnson84 4 days ago
Excellent song, you must be singing professionally for sure.
Ex Crohns sufferer here :) Suffered as a young child, diagnosed at 12 with UC, re-diagnosed at 13 with CD. Bowel resections, bowel removals, all the steroids etc.
I dropped it 13 years ago. No more suffering :)
Yes, it can get better and it can be over :)
theirritablebrainsyndrome.blogspot.com
creatingchange1@gmail.com
kitcam333 8 months ago
Love this song! Im so glad plp are taking the pain from ibd to songs! Wish i could do something like this from my crohns!
DaysWithMel 9 months ago
You bring such emotion to your songs. I battled UC for a so called short 2 years, undiagnosed. I was diagnosed 16/10/10, by 6/11/10 I was rushed in for emergency surgery. Total abdominal Colectomy with ileostomy end. I'm 21. When my symptoms started, I withdrew completely, it was ruining my life. My restroom became my bedroom, it felt. When I thought I felt alone and different from everyone else before, I was wrong. The truth is, after this surgery, I've never felt so alone as i do now.
mmajor2889 1 year ago
Fantastic sounding song man!
dgd187 1 year ago
This is great! thanks from one chronie to another
rwhiteangel 1 year ago
Can you post the tab/chords for this one?
nxzo2 1 year ago
what treatments to you get for your uc jordan?
BruceIsSoCool 1 year ago
This is the worst disease ever :(
But the song was awesome :)
omgitskelso 2 years ago 2
thanks man.
ILikeOWLS 2 years ago
pretty inspiring when u poured the milk down the drain. nice work.
ShaunFriedman 2 years ago
haha
ILikeOWLS 2 years ago
you have a nice voice! I sing too by the way...I have uc and im going through hell with mine right now, still trying to find something where the side effects arent worse then the disease itself...well anyways good luck to you and hope you feel better! :)
nycoleaugust 2 years ago
bummber dude... Well i hope you feel better, and thank you
ILikeOWLS 2 years ago
flare ups suck. we understand. you do good work.
IBDUwebsite 2 years ago
thanks so much...
ILikeOWLS 2 years ago
The quality of life is much better mate it took me 2 years of trying every med they had and nothing worked. I then got the operation and 2 months later i was 100% healthy go for it u wont regret it :D
GmcK182 2 years ago
i know what u mean.....after the 8th time on my Remicade i had an alergic reaction (anefelectic shock).... or however u spell that... and it was horrible. so i am not doing that again and no other meds work. i spent all last summer experimenting with all kinds of drugs and our last resort was remicade. it was seriously a miracle! i had sooo much energy and it felt like i was UC free.....so i decided to start running again and what do u know...i get a flareup and now i don't know what to do!!
A12345GUESS 2 years ago
From a fellow musician... Not to want to kill your musical muse, but, erm... I was able to conquer UC without surgery and (after a year) no drugs! Check out my first video (more to come) and join in the conversation.
PS: The song is pretty catchy, regardless of lyrics (I'm often more musical than lyrical in attention). Two comments: watch those vocal edits, and I'd rather hear your voice with a little less auto-tune, even if you feel the take isn't perfect. ;)
burgmail 2 years ago
Thats all well and good for youbut theres no need to brag!! Some people dont need surgery untill years later so your not out of the woods yet.
GmcK182 2 years ago
I'm sorry if it came across as if I was bragging. I meant to say there's hope: not everybody ends up needing surgery (and I'm not the only one who's been able to live symptom-free w/o drugs or surgery). If you want to know more, you can either drop me a private mail through YT or check out my videos. But since you already had the surgery, I'm guessing you're okay now w/o problems. I have to admit, I guess it irks me that people think, "surgery or drugs". I (and others) are proof otherwise.
burgmail 2 years ago
Excellent video, song, lyrics, music. You rock! Hope there IS healing in your future.
shelleyhussey 2 years ago
I'm 15 with UC and i get what your saying i just want it to be over.....YOur song is great...good luck with everything.
nikeswooshout 3 years ago
thanks and good luck!
greenjordano 2 years ago
hey there :)
i was diagnosed with UC about 5 years ago. i'm 17 now, and i have an astomy bad at the moment.. i've had my first surgery already. and i'm going on my second here in a while. i just have to lose about 30 more lbs, and i'll be good to go.. i really like your video, it really made me feel like there are other people out there who have been through what i've gone through so far. and i really am glad that you and other people out there make movies to help other people. take care :D
lilskunk09 3 years ago
This disease it horrible. i hope you start to feel better... I appreciate your kind words, and i'm glad to hear that i brightened up your day. :)
ILikeOWLS 3 years ago
LOVED IT!!!! GREAT VIDEO! Thanks so much!!! I feel like no one really understands and it is so nice to have all off you and I needed that today~ flaring, unbearable pain/ desending belly woke me on and off through the night and today I feel like someone has beaten the sh@# out of my intestines not to mention the cutting FIRE~ hey, is there anything to sooth this pain? I am on pentasa and encort but out of the encort stuff for a while and I lost 20+ lbs
rwhiteangel 3 years ago
There are plenty of young people out there with this disease including me i got the operation when i was 19 theres a few facebook pages you should check out jus search for ulcerative colitis on facebook.
GmcK182 2 years ago
how long have you been on remicade? how does it work for you? me, it's been about 6 months and it helps a lot, but doesn't take all the symptoms away for sure.
sfmichale 3 years ago
i'm the same way... its works great. but dosnt eliminate the colitis
ILikeOWLS 3 years ago
There's light at the end of our tunnel. I've been able to control UC with Asacol and a really good diet. After I graduate, and get my own place, I'm gonna get a real decent juicer and improve my diet even more. No more Asacol after that. I wish you all a solid night of sleep.
cri8tor 3 years ago
when i juice i flare
ILikeOWLS 3 years ago
Hey I have UC, have had it for 1.5 years now, been hospitialised twice, so far 2/3 of my bowel was infected, now just 7cm, just a question for people that have had their colon removed, do you end up with a bag or just like a fake parts replacing your colon? because i know about 40% of ppl who suffer from UC have to eventually have part of their bowel or colon removed. different doctors have told me different things, thought i would ask people who have gone through it :)
millwa1985 3 years ago
Hey millwa1985
I feel for you. Do a ton of research. Go to the library, read tons of books, use the internet and talk to tons of people with and without UC. I've been dealing with UC since 2001 and tried things like meditation and a change in diet that seemed to work for me, but not for others.
Fight it like the Devil!
Never give up.
cri8tor 3 years ago
i had ulcerative colitis for about 1.5 years before i realized my colon had to be removed. the remicade didn't work, but now about 1 year after the colectomy i feel much better and am so happy it is all over.
nygiants93 3 years ago
no beer for you...or me.
if you have uc is it ok to drink during periods of remission. i was about 16 when i got it but it was only there for a month then went away. was in remission for 3 years after now its back. i dont have it bad now but i know it could get worse any time. i ask the question above because i used to drink when i was in remission and nothing bad happened. if any of you drink does it make it worse for you during remission?
harpmanfishy 3 years ago
Sweet. I've got Crohn's, I got it when I was eight. But I'm mostly better now. Miralax! The number one prescribed laxative in America! (I dunno, other peeps were mentioning remicade...) ANYWAYS good video!
Dinosaurs411 3 years ago 2
im on remicade!
ILikeOWLS 3 years ago
ulcerative colitis has a cure - surgery i had an illiostomy in 1999 and have recently had my rectal stump removed im a 38 year old male whos healing and on the mend. the only song that sticks in my mind is "THE RING OF FIRE" Good look to every one whos got it Never give up.
oilbarron70 3 years ago
was diagnosed with crohn's when I was 11, in the childrens hospital for over a month, severe and occasional flareups for 5 years, was on remicade for 5 years and it helped a lot, stopped working eventually, humira didn't work, had ileostomy surgery last may 22, life is much better now
hiked mount washington a few days ago on a vacation to new hampshire, would never have happened when I was sick
good luck with remicade/whatever you decide to do
TheJoshuaa 3 years ago
nice to know i'm not the only one
OhStopWithThis 3 years ago
Nice song man! I was diagnosed with UC when i was 14, im 18 now, i started remicade when i was i think 15? i had to get it every 2 months, but then one dose i took it and havent gone since, that was almost 2 years ago
BosNianBaLLer12 3 years ago
hey!
great videos and songs!
i have UC, and i completly relate to these words and videos!!
SuziQ4174 3 years ago
Awesome! I have IBD too. Hate it!
khrystal1968 3 years ago
Love the song, its incredible.
Nice to know I am not the only one.
I have UC and in the midst of a flare up.
(remicade is my miracle drug)
mohemckee 3 years ago
mine too! haha :)
ILikeOWLS 3 years ago
lol Great song. Love the vid also.. It describes how I'm feeling completely. you'll never know when or if Crohn's will flare up in your life.
hserokdivad 4 years ago 2
nice song and video man :) i too had UC but tried remicade, never really worked so i went wit the operation lifes so much better now so jus rememeber u always hav a back up plan :)
GmcK182 4 years ago
yeah thanks for that man... im on remicade as we speak
ILikeOWLS 4 years ago
Looking Forward to Cimzia? We'l see
kasper1187 4 years ago
Wow....
Tjakoe 4 years ago 3
nice video and song.
linds92 4 years ago 3
thanks.. how u feeling?
ILikeOWLS 4 years ago
i'm doing good, thanks to remicade lol. how are you?
linds92 4 years ago
same, thanks to remicade
ILikeOWLS 4 years ago
thank god for remicade! haha
linds92 4 years ago