Added: 5 years ago
From: ProventusUK
Views: 12,366
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  • I thought MS was mostly benign when it presents in younger people?

  • @guitarobsessed85 MS can present with many varying symptoms from a very young age upwards - benign MS is usually discovered after a person has died.

  • do u drink coffee ? If yes, how much ?

  • @maciejwrotek Coffee is drunk but only one cup per day is allowed

  • i take LDN 4.5, have been taking it for the past 6 months

    but it doesn't work for everybody from what i have read

    i go out for daily walks in the sun if possible

    i take b12 shot every month, i do stretching drink a lot of water

    i realized that some foods specially junk food will start to cause me numbness in my face a couple of days after i eat them

  • @Masriboy1985 As with all novel treatments for MS lifestyle guidance is required to maximise any potential benefit that may be gained

  • I've had M.S six years, been on Tysabri 3yrs. It has worked well for me, got me off of my cane.

  • People who take Tysabri have a 1:1000 chance of contracting a fatal brain disease after only two years.

  • Tysabri, it is not for everyone but it is only 1 a month instead of four.

  • hey i have MS too and i was in university when i got dianosed i also have epilepsy and it stopped me from going to law school because i have short term memory problems. so hang in there girl your not alone in this fight.

  • Hang in there Claire, Aimspro will eventually be available to all of us that need it. I have to believe that.

  • Did she say 'GOAT SERUM' ? what's that? ... Help- anyone?!?!

  • does Clare know that NICE has just approved (July 2007) reimbursment for Tysabri ? It is better than any other MS drug, none of which NICE has ever approved before. There is a video by a guy on U-Tube here called "Tysabri Recovery", I suggest that all MS-ers take a look at it.

  • I unfortunately know exactly what you are going through. I'm taking LDN as treatment which is also not yet approved. Would love to be updated on how you get on bieng that our symptoms are very similar.

    Wishing you all the best,

    Julie

    x

  • Hiya mate, was good to speak with you last week after soooo long, promise you will come and see us next time you are back in the vale?

    Not sure when Bon-Jovi gig is but hope you enjoy it

    Love JF

  • Some are very young others are older, either sex, any color.Crazy conditions.

    LuisM

    Hoboken NJ

  • So sad and so young.

    I pray to god claire that you and all the other suffers will get the help you need soon.

    Brian xx

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