Tami's VLOG: Fibrous Dyplasia 3

[mistresscharlie]

Tami I love you and your friend Kats videos...I want to make one about my fd story also. I had it on my frontal cranial bone. My name is Cherie, I am about to be 30 and was diagnosed at 21.

[mistresscharlie]

hco 323 you are not alone. I fought fd on my face...had 2 surgeries..I know it is hard to keep going but we all stand together. Life is so much more than this..remember that God created you uniquely and every person fights their own battles, ours is harder than the average person but you can do it! Keep living and fight the good fight!

[hco323]

can you make more video. you're lucky. your gum didnt get infected as well. i have it on my right side of my face. major deformity. I had one surgery and its soo frustrating that no one will hear me out and get me more at least minor. I can't stand it anymore. Sometimes i just want to end this life i have because it ruining every aspect of my life.

[kramsey2006]

Love it! Especially the "Full of shit" comment"! Thank you my friend!

[tonny239]

Hey i understand what u r going through.I have FD on my ribs n on my spine n yes it is very painful.I have had 3 operations so far they had to remove 1 in a half of my ribs on my rite side n 2 on my left sid n for my spine they had to pour cement so that way it would' nt collapse it really hurts when im in a cold area n my sides start to swell up it's very painful.and all of the tumors have grow rite back but i really cant go through another surgery thx 4 sharing ur video my NAME is GEORGE

[tonny239]

Hey i understand what u r going through.I have FD on my ribs n on my spine n yes it is very painful.I have had 3 operations so far they had to remove 1 in a half of my ribs on my rite side n 2 on my left sid n for my spine they had to pour cement so that way it would' nt collapse it really hurts when im in a cold area n my sides start to swell up it's very painful...and all of the tumors have grow rite back but i really cant go through another surgery thx 4 sharing ur video my name is GEORGE

[ctorres77]

Your Video is great! My 6 year old daughter has FD on her right cheek. Since we found about 2 yrs now..your videos have given us a more understanding of how it is for her. She has gone through surgery for about a year ago. She lost her right vision after her surgery because of FD. But she still has FD and doctors advice will continue to grow. Tammy your an amazing woman!!

[marcwa74]

Great video and thanx for the post.. I have FD in my face as well and I'm curious about surgery. Do the tumors grow back after surgery? Hope you are well you can hit me up at lealand1711@yahoo.com

[BlueFirefly010]

I rember you saying that you didn't get treatment for your FD until you were much older... Do you think since mine was treated with correction surgeries since it was first detected (4th grade) are my chances of living a more normal life as I get older better? I had one doctor say that as I get older it dissipates on it's own. Do you believe that's true?

[burjamin]

I have FD and dont take pain meds =p I'm 27 had an opp at 19 on my jaw, has regrown again but not as bad.

I only get pain sometimes in the back of head and always assume thats just a normal headache.. Could br FD but I dont need meds for it.

Nice vid though, its helped to hear your story and thoughts.