Thanks for the update. I wish you good health. Health Canada just launched clinical trials on CCSVI, so Zamboni has made an impact. I am pleased to hear that you are well.
@harmagician1 I am happy to hear that trials have been launched. It really needs to happen, not just to endorse what we are saying but to help as many people as possible as quickly as possible. Thanks for your comment
Walking? Do you have stents? I am having my 3rd CCSVI in May at Pacific Interventalists in Costa Mesa.. I'm ready for a stent. When were you diagnosed? I'm 24 years now unofficially. Good to hear your good news. Liberate Michelle
@LiberateMichelle Hi Michelle, I have RR and am walking. I was walking before treatment but not well. I do not have stents. When I had my third treatment I wouldn't have needed them anyway as the initial stenoses were open. I just had a minor stenosis that had not been treated before. I was diagnosed in 08, have been symptomatic for at least a decade before that. Hope your third goes well. Kerri
Hey Kerri, just posted a question for Dr. Zamboni. Suppose there will be 100's of them & mine will not even see the light of day Lol. Good luck with your presentation. Hope it will be recorded so we all get to see this exciting event. :)
@rickileeway Where did you post it? I haven't come across it yet. I actually haven't got many emailed in yet so you may well be lucky enough :) It will all be recorded. The Friday night session will be uploaded to my Youtube, the Saturday morning is being recorded by MSA and they will be posting it through their normal channels hopefully.
I just got an email from you saying you received the question. Sorry, I'm Rick 'aka' Lee (Facebook). Rick is just a nickname I used for utube long before I joined facebook fairly recently.
@MrDOZER1224 All I know is we are so early in understanding the link between MS and our vascular systems. I hope we find ourselves with many more answers as time goes on.
@kezzcass@kezzcass They haven't been able to identify ms or any other diagnosis. Just chronic high inflammation. After a long string of 'ologists' my new gp has recommended I see a vascular guy. Sound familiar? Meanwhile I've cut out gluten and carbs, lost 35-40 pounds, and feel somewhat better than I did, but I'm still dragging a ball and chain around. Because they could not confirm ms I thought CCSVI did not apply to me. It'd be ironic if the vascular guy says it does. So glad you're well.
@gphx NO WAY!!??That would be SO ironic. Well the word on the street is that CCSVI is being found in other neurodegenerative diseases so it wouldn't shock me. I hope your vascular guy is familiar with the research on this. I am glad you are feeling a little better, for sure there are many factors to consider in keeping well.
You've been a busy girl! So it's over a year since that day you walked into that hospital ward to meet me (the day after I started walking again). It's wonderful to hear that you're still feeling so good and that going off tysabri hasn't made any difference. A holiday sounds great! Hope you enjoy all that vitamin D :-) See you on the 1st.
@missalgernon Hey yeah that was forever ago. I feel better off Tysabri I have to say, how's it going for you now? Got more Vit D than I should've actually. Look forward to seeing you soon. xx
I am glade u r doing very well. It would be great if the sessions could be done with a live feed to the internet. I am not a usual correspondence of yours but have been watching for a long time (thanks for posting). I have been trying to work with Drs locally and have not had success with getting any of them to give it a try, however I have just recently found a Dr just a short way from me and have set up an appointment to have venoplasty done. Very Exciting
@ruralbs Yeah it would be good to have a live feed. I guess it just needs someone to be able to do it and volunteer - I am not computer savvy enough to figure that one out! All the very best for that appointment, let me know how you go. Kerri
@PlumRed99 Thanks Mary. It is all very exciting, especially now that Norman Swan has aired his interview - that was a big relief to finally FINALLY get it out in the public realm here. Wish you could be here! K
@irishbear76 Hahaha I can so picture you doing that! Relapse free for 7 months? That is fabulous. And it's nice not to see so many vids from you... knowing you are out embracing life. (I mean that in a good way you understand, not that I am pleased to not be seeing ya about). Sending love back from downunder. Kerri
Kerry, amazing to see you and happy ccsvi birthday! I just came home from my round 2, but I went directly to babysitting and family stuff, so I'm still not sure what's worked and not. You look so much better still than in your first videos pre ccsvi. Enjoy the sunshine, soon it's our turn to have the sun back! (freezing in snow and cold winds still :( )
@BrendaRaven1 Hi Brenda, haha yep sounds like you guys are ready for some sunshine. I've certainly had my fair share the last week or so in Queensland... lovely. Look forward to hearing your update on round 2.
Thank you for the video Kerri. So, when do you think that they will get around to preventing the re-narrowing? I'm glad to see that you are doing well. I have always wondered whether it was the medication that I have been taking or the life style changes that I made that has made a difference with the relapsing that I felt since the beginning of my plight with MS.
@tazscott14 Wish I knew. At least we do know the IRs are talking about it. I think there are many factors that affect our wellness. I can only comment on my own experience and the DMDs didn't do much for me over 2 years. Now six months off everything and no relapse... makes me wonder. I am sure my lifestyle changes have helped.
@kezzcass Hi Kerri, I was just talking opinions with my question. I think I will demand to see an IR when I see the neurologist next week. Maybe it is time to take a break from the drugs. I am so glad that you are doing well. Take care, Bill
@tazscott14 Good luck with that one Bill. I am yet to hear of a Neuro who has honoured that request. Yeah, I am so happy to be in a place where I could have a break from the meds and really have no plan to go back on anything. Good luck. K
Happy Birthday Kerri it has been quite the year and will never forget how you have helped so many !!! In the coming year you will celebrate many moments of joy I'm sure as living life to the fullest is all we have been asking for and helping so many along the way.
Continued health to you and thank you again for all you do in showing me a path to my liberation which continues to improve. I will never forget watching your liberation in Norway
"Freedom 90" should become "Freedom 2010" for you.
@mackierojo And I will never forget you talking about my bladder in Norway!! HAHAHA. I still laugh at that. I am so thrilled to hear you are continuing to improve. As time goes on there's more and more good stories like ours which is great... but there's still much more to be done!
Hello Kerri Wonderful to hear you are doing so well a year after your treatment. Hope you continue to do well. Looking forward to hopefully getting treated in July and really hope to get my life back. Enjoy your new freedom.
@OneScruffyOne Thanks, I too hope that things continue in the same way. July, seems like a long wait but you'll get there! I really hope you have terrific outcomes. Keep me informed. Kerri
Excellent video! I'm sure your testimonial will, as always, be impeccably honest and measured - you'll go down a storm. Hmm - when a woman testifies, shouldn't it be 'ovarifies'? ;-)
Have a great holiday. I'll look forward to the video xx
@lovingfatalist Going down a storm? I am assuming that is a good thing! Ovarifies?? Oh dear - that's a bad one T! ahahaha Had a great holiday, would like to say I rested and relaxed but I spent most of the last 10 days on rollercoasters and slides. Now I'm home to rest! K x
@watzgoodinthe711 I was diagnosed 2.5 years ago, I reckon I have had it over a decade but it started ramping up about 5 years ago. Yep I can walk well. Just spent 10 days in Queensland and did 4 days of theme parks! I was exhausted but anyone would be :) Still get tingling in my feet a little but doesn't really slow me down.
OH Kerri! that (something)inside is a treasure! and you can cuddle it all you want and you should! YOU have given so much hope and good spirits with all your videos! I wish hubby and I could be there. to cheer you but we will be there in spirit :)
Very happy to hear your doing well, health wise! and all thats coming your way!
I wish you and the family well :) and look forward to all the updates! Hubby says hello and sends his best! and were all praying for GRACE xo susan
OH Kerri! that (something)inside is is a treasure! and you can cuddle it all you want and you should! YOU have given so much hope and good spirits with all your videos! I wish hubby and I could be there... to cheer you but we will be there in spirit :)
Very happy to hear your doing well, health wise! and all thats coming your way!
I wish you and the family well :) and look forward to all the updates! Hubby says hello and sends his best! and were all praying for GRACE
Thanks for the update. I wish you good health. Health Canada just launched clinical trials on CCSVI, so Zamboni has made an impact. I am pleased to hear that you are well.
harmagician1 1 month ago
@harmagician1 I am happy to hear that trials have been launched. It really needs to happen, not just to endorse what we are saying but to help as many people as possible as quickly as possible. Thanks for your comment
kezzcass 1 month ago
You are my hero, Kerri!!!! Thanks for sharing with all of us who are "lost" in this maze and looking for answers!!!! MUCH LOVE, DEAR!!!!
crdefhead 7 months ago
I'm so glad ur doing great, Kerri! Thanks for keeping us updated! I will take a look at the videos that u posted 4 us!
I'm doing well myself. Still on Tysabri. I just got back from the Caribbean where I celebrated my bday :-)
Keep in touch!!
WithCourage2008 10 months ago
@WithCourage2008 Wow the Caribbean! How wonderful and Happy Birthday. I am so glad to here you continue to do well. Kerri :)
kezzcass 10 months ago
kezzcass, Are you R&R or secondary?
Walking? Do you have stents? I am having my 3rd CCSVI in May at Pacific Interventalists in Costa Mesa.. I'm ready for a stent. When were you diagnosed? I'm 24 years now unofficially. Good to hear your good news. Liberate Michelle
LiberateMichelle 10 months ago
@LiberateMichelle Hi Michelle, I have RR and am walking. I was walking before treatment but not well. I do not have stents. When I had my third treatment I wouldn't have needed them anyway as the initial stenoses were open. I just had a minor stenosis that had not been treated before. I was diagnosed in 08, have been symptomatic for at least a decade before that. Hope your third goes well. Kerri
kezzcass 10 months ago
Hey Kerri, just posted a question for Dr. Zamboni. Suppose there will be 100's of them & mine will not even see the light of day Lol. Good luck with your presentation. Hope it will be recorded so we all get to see this exciting event. :)
rickileeway 11 months ago
@rickileeway Where did you post it? I haven't come across it yet. I actually haven't got many emailed in yet so you may well be lucky enough :) It will all be recorded. The Friday night session will be uploaded to my Youtube, the Saturday morning is being recorded by MSA and they will be posting it through their normal channels hopefully.
kezzcass 11 months ago
@kezzcass Thats great to know Kerri!
I just got an email from you saying you received the question. Sorry, I'm Rick 'aka' Lee (Facebook). Rick is just a nickname I used for utube long before I joined facebook fairly recently.
rickileeway 11 months ago
@rickileeway Ahhhhh now it all becomes clear :) Haha and here I was thinking you were two different people!
kezzcass 11 months ago
@kezzcass Yeh! Thats understandable. Sorry about the confusion. :)
rickileeway 11 months ago
i just had my first ty the other day do u think it will get better with in a year
MrDOZER1224 11 months ago
@MrDOZER1224 I couldn't say. I hope it works well for you. :)
kezzcass 11 months ago
how long were u on tysabri ..so ur not on anything ??????
MrDOZER1224 11 months ago
@MrDOZER1224 I am not on anything at all at present (just some Vitamin D3). I was on Tysabri for 16 months.
kezzcass 11 months ago
thats kool i dnt know why mine didnt work
MrDOZER1224 11 months ago
@MrDOZER1224 All I know is we are so early in understanding the link between MS and our vascular systems. I hope we find ourselves with many more answers as time goes on.
kezzcass 11 months ago
are u still on tysabri??????
MrDOZER1224 11 months ago
@MrDOZER1224 Nope, I have been off it for six months. Still feeling great. :)
kezzcass 11 months ago
Hey this is great!
gphx 11 months ago
@gphx Thanks Darrin, haven't seen a vid from you in a while. How are things?
kezzcass 11 months ago
@kezzcass @kezzcass They haven't been able to identify ms or any other diagnosis. Just chronic high inflammation. After a long string of 'ologists' my new gp has recommended I see a vascular guy. Sound familiar? Meanwhile I've cut out gluten and carbs, lost 35-40 pounds, and feel somewhat better than I did, but I'm still dragging a ball and chain around. Because they could not confirm ms I thought CCSVI did not apply to me. It'd be ironic if the vascular guy says it does. So glad you're well.
gphx 11 months ago
@gphx NO WAY!!??That would be SO ironic. Well the word on the street is that CCSVI is being found in other neurodegenerative diseases so it wouldn't shock me. I hope your vascular guy is familiar with the research on this. I am glad you are feeling a little better, for sure there are many factors to consider in keeping well.
kezzcass 11 months ago
You've been a busy girl! So it's over a year since that day you walked into that hospital ward to meet me (the day after I started walking again). It's wonderful to hear that you're still feeling so good and that going off tysabri hasn't made any difference. A holiday sounds great! Hope you enjoy all that vitamin D :-) See you on the 1st.
missalgernon 11 months ago
@missalgernon Hey yeah that was forever ago. I feel better off Tysabri I have to say, how's it going for you now? Got more Vit D than I should've actually. Look forward to seeing you soon. xx
kezzcass 11 months ago
I am glade u r doing very well. It would be great if the sessions could be done with a live feed to the internet. I am not a usual correspondence of yours but have been watching for a long time (thanks for posting). I have been trying to work with Drs locally and have not had success with getting any of them to give it a try, however I have just recently found a Dr just a short way from me and have set up an appointment to have venoplasty done. Very Exciting
ruralbs 11 months ago
@ruralbs Yeah it would be good to have a live feed. I guess it just needs someone to be able to do it and volunteer - I am not computer savvy enough to figure that one out! All the very best for that appointment, let me know how you go. Kerri
kezzcass 11 months ago
I'm so happy you are well. Also happy you will be able to video the exciting stuff happening in Melb! Good luck with your presentation ;)
PlumRed99 11 months ago
@PlumRed99 Thanks Mary. It is all very exciting, especially now that Norman Swan has aired his interview - that was a big relief to finally FINALLY get it out in the public realm here. Wish you could be here! K
kezzcass 11 months ago
I remember getting so excited and yelling at the monitor "YESSS!!!" when you announced that you had the Liberation Procedure.
Little did I know I would be getting my own angioplasty just 5 months later.
Now, I am relapse free for 7 months and MS is a memory.
God is good.
Keep truckin' and love from up over.
Mark
irishbear76 11 months ago
@irishbear76 Hahaha I can so picture you doing that! Relapse free for 7 months? That is fabulous. And it's nice not to see so many vids from you... knowing you are out embracing life. (I mean that in a good way you understand, not that I am pleased to not be seeing ya about). Sending love back from downunder. Kerri
kezzcass 11 months ago
Happy Anniversary Kezza! And bring on the good times, bring them on! xxxxx
andie221 11 months ago
@andie221 Thanks sweet lady. Yeah bring it on! You just need your turn then we can do some serious dancing :) x
kezzcass 11 months ago
Yes, you certainly deserve a great holiday Kerri. Thanks for everything you have done & wishing you continued great health too.
rickileeway 11 months ago
@rickileeway Thanks Rick, had a great holiday. Thanks for your messages along the way. K
kezzcass 11 months ago
Hi Kerri, Your looking healthy. Thanks for sharing and keeping us updated. Hope you have a lovely holiday, you deserve it. :) ...
LouLou3078 11 months ago
@LouLou3078 Thanks Lou, feeling healthy too... now back to work eh? ;o)
kezzcass 11 months ago
Kerry..you are a valuable pioneer in the travels of CCSVI..Bravo to you..keep up the grand work..
peace love and ligth
Jayne Thomas
jayne4ccsvi 11 months ago
@jayne4ccsvi Thanks Jayne :)
kezzcass 11 months ago
Kerry, amazing to see you and happy ccsvi birthday! I just came home from my round 2, but I went directly to babysitting and family stuff, so I'm still not sure what's worked and not. You look so much better still than in your first videos pre ccsvi. Enjoy the sunshine, soon it's our turn to have the sun back! (freezing in snow and cold winds still :( )
BrendaRaven1 11 months ago
@BrendaRaven1 Hi Brenda, haha yep sounds like you guys are ready for some sunshine. I've certainly had my fair share the last week or so in Queensland... lovely. Look forward to hearing your update on round 2.
kezzcass 11 months ago
Thank you for the video Kerri. So, when do you think that they will get around to preventing the re-narrowing? I'm glad to see that you are doing well. I have always wondered whether it was the medication that I have been taking or the life style changes that I made that has made a difference with the relapsing that I felt since the beginning of my plight with MS.
tazscott14 11 months ago
@tazscott14 Wish I knew. At least we do know the IRs are talking about it. I think there are many factors that affect our wellness. I can only comment on my own experience and the DMDs didn't do much for me over 2 years. Now six months off everything and no relapse... makes me wonder. I am sure my lifestyle changes have helped.
kezzcass 11 months ago
@kezzcass Hi Kerri, I was just talking opinions with my question. I think I will demand to see an IR when I see the neurologist next week. Maybe it is time to take a break from the drugs. I am so glad that you are doing well. Take care, Bill
tazscott14 11 months ago
@tazscott14 Good luck with that one Bill. I am yet to hear of a Neuro who has honoured that request. Yeah, I am so happy to be in a place where I could have a break from the meds and really have no plan to go back on anything. Good luck. K
kezzcass 11 months ago
so happy for you Kerri! It's been so nice getting to know you through your videos. You rock!!!!!!!!!!
christinedavi 11 months ago
@christinedavi Thanks Christine. You are always so lovely xx
kezzcass 11 months ago
Happy Birthday Kerri it has been quite the year and will never forget how you have helped so many !!! In the coming year you will celebrate many moments of joy I'm sure as living life to the fullest is all we have been asking for and helping so many along the way.
Continued health to you and thank you again for all you do in showing me a path to my liberation which continues to improve. I will never forget watching your liberation in Norway
"Freedom 90" should become "Freedom 2010" for you.
mackierojo 11 months ago
@mackierojo And I will never forget you talking about my bladder in Norway!! HAHAHA. I still laugh at that. I am so thrilled to hear you are continuing to improve. As time goes on there's more and more good stories like ours which is great... but there's still much more to be done!
kezzcass 11 months ago
Hello Kerri Wonderful to hear you are doing so well a year after your treatment. Hope you continue to do well. Looking forward to hopefully getting treated in July and really hope to get my life back. Enjoy your new freedom.
OneScruffyOne 11 months ago
@OneScruffyOne Thanks, I too hope that things continue in the same way. July, seems like a long wait but you'll get there! I really hope you have terrific outcomes. Keep me informed. Kerri
kezzcass 11 months ago
Happy Birthday! Thank you for your bravery and sharing.
jmacman007 11 months ago
@jmacman007 Thanks very much. :)
kezzcass 11 months ago
Great to hear you're so well, Kerri! :) Beautiful!!
thepasture 11 months ago
@thepasture Thank you :)
kezzcass 11 months ago
Happy Birthday! Great, encouraging video! Thanks for all you've done for the MS community.
MsHopeforhealing 11 months ago 2
@MsHopeforhealing Thanks very much. Not just me but the combination of many people worldwide. It's all good stuff :)
kezzcass 11 months ago
Excellent video! I'm sure your testimonial will, as always, be impeccably honest and measured - you'll go down a storm. Hmm - when a woman testifies, shouldn't it be 'ovarifies'? ;-)
Have a great holiday. I'll look forward to the video xx
lovingfatalist 11 months ago
@lovingfatalist Going down a storm? I am assuming that is a good thing! Ovarifies?? Oh dear - that's a bad one T! ahahaha Had a great holiday, would like to say I rested and relaxed but I spent most of the last 10 days on rollercoasters and slides. Now I'm home to rest! K x
kezzcass 11 months ago
i pray that the surgery continues to do wonders for you and i pray that one day i get to get the surgery and enjoy being normal again like you do!
cityonfire31811 11 months ago
@cityonfire31811 I hope you have opportunity to give it a go and that you have good results. Thanks for your prayers. K
kezzcass 11 months ago
how long have you had M.S. And are you still able to walk for long distances
watzgoodinthe711 11 months ago
@watzgoodinthe711 I was diagnosed 2.5 years ago, I reckon I have had it over a decade but it started ramping up about 5 years ago. Yep I can walk well. Just spent 10 days in Queensland and did 4 days of theme parks! I was exhausted but anyone would be :) Still get tingling in my feet a little but doesn't really slow me down.
kezzcass 11 months ago
OH Kerri! that (something)inside is a treasure! and you can cuddle it all you want and you should! YOU have given so much hope and good spirits with all your videos! I wish hubby and I could be there. to cheer you but we will be there in spirit :)
Very happy to hear your doing well, health wise! and all thats coming your way!
I wish you and the family well :) and look forward to all the updates! Hubby says hello and sends his best! and were all praying for GRACE xo susan
ThePennygirl 11 months ago
@ThePennygirl Thanks Susan, you've always been an encouragement. Hope you are doing ok right now. Hi back to your hubby :) Kerri x
kezzcass 11 months ago
OH Kerri! that (something)inside is is a treasure! and you can cuddle it all you want and you should! YOU have given so much hope and good spirits with all your videos! I wish hubby and I could be there... to cheer you but we will be there in spirit :)
Very happy to hear your doing well, health wise! and all thats coming your way!
I wish you and the family well :) and look forward to all the updates! Hubby says hello and sends his best! and were all praying for GRACE
ThePennygirl 11 months ago