Keratoconus - Let me show you my eyes. - @elluzero

[Benn289]

ive had keratoconus for four years now. im turning 23 in april of in 2012. it sucks that this condition isnt taken very seriously by our government. they wont help you until your eyes arent able to use the contacts anymore which could be the least half a decade to an entire decade depending on your progression rate. i feel for everyone who has it and want you to know i understand what its like. god bless you all. peace.

[yazafara]

wow!! Ur my inspiration--my 18 yr old niece was diagnosed with KC n our world fell apart--we r trying the Secret an natural remedies--we have visited the dr--hesasked us to come in on tues--we wanna do all the right things before we meet him

[gingersprockit]

Im about to try Kerasoft ic lenses, soft lense fof kc. ill let u no how i get on, my kc isnt as noticable as yours, but ive had it for about 10 years now and its constantly getting worse. Im at the stages without lenses i cant drive or make out peoples faces when there further than 10feet away.

[yazafara]

@gingersprockit --theres this lens called RGP lens--rigid gas preamble lens for KC--and also take natural foods

[ChequeWriter]

Hows ur kc going? Ive had crosslinking in both eyes n now wearing piggy back system kind of successfully.

[LifeWithKeratoconus]

Great video mate.

[carlajohmb]

hey thanks for sharing your video, i have to say i was diagnosed with keratoconus about 3 or four years ago, and it started on my left eye, now a doctor told me i have it on my right eye as well.., and it sucks, i almost never use my gas pearmeable hard lenses because they are so uncomfortable, and i know my only choice would be surgery. and it sux though because its such an expensive surgery...and the worse part is that eventually you can reach blindness if you dont do anything about it.

[xaimy80]

I have kc and I am about to start the process of evaluation for intacs bc my rigids are no longer working for me. I hope you are able to get the condition corrected, I know first hand how this can affect your life. God bless you and best wishes.

[ChequeWriter]

@xaimy80 Forget intacts mayne. Get yourself some Corneal Cross-linking surgery plus topography guided laser correction. I've got a consultation for this procedure in 2 days.

[Frash99]

it's a difficult disease as it is often undetected until the cone is more dramatic.. if only it could be detected earlier in teenagers, possibly there are nutrients that could help the cornea's strength as it continues to develop. it helps to know other people are struggling with this disease...appreciate it. take care

[Frash99]

thx for sharing your story! i've had kc since freshman year in high school.  it has gotten progressively worse as the years have gone by. I am 24 now and the vision in my right eye is almost completely blurred, halos around everything. My left eye is less so, and thankfully I can still see for the most part. I am currently using the gas permeable contacts, although I am still having trouble finding a good fit for the right eye. My doctor says the longer we can put off surgery, the better.

[ChequeWriter]

@Frash99 I have KC. I dunno why your doctor says the longer you can put off the surgery, the better. That makes no sense. The longer you wait the thinner you corneas get and the more distorted your vision gets until you cannot use rgp lenses and you're forced to go to surgery. Your best bet is considering corneal cross-linking surgery to halt the progression of the disease and then get laser treatment to correct the cornea's shape after treatment. Wait too long and corneas may be too thin.

[Frash99]

@ChequeWriter I appreciate the response cheque, i was honestly waiting to get some outside advice, but it's tough to get good advice from people that just don't have the disease. Is that the procedure you had done? How has it worked for you? I will discuss it with him the next time I go in, which should be soon since I keep losing my contacts. Even then, people have told me to just seek a second opinion either way.

[KTBee30]

Thanks for the video. I was diagnosed with KC last year but it has gotten worse. I just got my hard lenses 2 days ago. It has been a big adjustment but it fells so good to be able to see. The discomfort is worth it because my vision was terrible. The fear that you will lose your eyesight is scary. Your video really put into perspective how those with KC see. Thanks so much and I am praying for your eyesight.

[ChequeWriter]

@KTBee30 You can't go blind from KC.

[KTBee30]

@ChequeWriter I know I can't go blind but it is just frustrating at times, before I knew that I had kc I was just scared that I was losing my vision because mine progressed so quickly

[lovo356]

GP contacts are amazing

[CUNTSMUGGALER]

OMG dude u rock i have the same disorder and i make muzik it makes it extremmely difficult to read my lyrics 85% of the time but i got some contacts and everything seems better now yo check out my muzik there my videos on my profile and i know how u feel i enjoy what i see even if i cant see what they see mmfwcl

[simoneeliott85]

hey mate im living in sydney australia and know exactly what you are going through my keratoconus has been progressing since i was 16 years of age and now im 27 its slowly getting worse i am going to get kera rings soon but they cost $4000 an eye so im starting to save my dollariedoos i will do one eye at a time just in case of problemos good luck mate

[AliasEternalNET]

@simoneeliott85 Good Luck to you too! Thanks for the comment! Peace!

[villon2k7]

at the age of 22 i am screwed i have no insuranced and no way to pay for the lenses i also work my ass off but bill and having a place to stay is more important. I hope to have this fixed soon but i feel like there is no end to this madness. hopfully this new job will get me to the point where i can get some help but for now i just have to deal with it i guess. I dont even read anymore and my life is now centered on how i see. Keratoconus runs my life.

[Nkkicute]

@villon2k7 I just received my lenses today, $225 a piece!! And that's saperate from just seeing the opthamologist ($354). Everything is so sharp and crisp!! It's like I'm seeing in HD TV!!! lol I could not even see the words on the page of a book at arms length, now I can!! When I saw myself in the mirror I looked so different from what I thought I looked like. I have no insurance so this came out of my pocket! I hope you get yours soon, you'll be free when Keratoconus no longer runs your life

[CUNTSMUGGALER]

@Nkkicute yup yup i jus got myne today best money i ever spent in my life

[choiminsik1]

@villon2k7 im 21 and sufffer under the same conditions u just descrribed this has put me through hell especially becaue i started school for paramedics and know i dont even botherto attend classes cause my vision is terrible so know im just waiting for these special rgp lenses to come and save me the worst part about the whole situation is that no one at school or work appreciates what im going throough so they think im aa slacker cause i struggle to read

[AliasEternalNET]

@choiminsik1 I feel that. Somebody told me once "Those who mind, don't matter. Those who matter, don't mind".

Good luck!

[LacSam15]

going to see eye doctor to confirm if i got KC :/ fingers crossed

[AliasEternalNET]

@LacSam15 Good Luck!

[HairNailsBeautytips]

I'm praying your eyes my brother. I understand what your going through. Rosa

[anicebarbosa]

i live with keratoconus also... i got diagnosed six years ago!

[Changedon666]

i feel your pain man. i have had keratoconus since i was in the 5th grade and now im a senior. just got prescribed hard contact lenses. hoping that they help. the lady that just prescribed me the contacts called my last eye doctor an idiot for prescribing me glasses because they don't help kc at all. anyways, gl with your albums man.

[AliasEternalNET]

I was actually fortunate enough to try those new hybrid contacts (hard in the middle and soft on the outside) They actually felt REALLY good and of course my vision was straight. Biggest obstacle will be getting insurance to cover them. :(

[paigerockson]

So...Your a white guy who never was a badass.. Then you took on the persona of a black guy who pretends to be a badass. You got your silly Vanilla Ice look down, you practiced your ghetto yo bro lingo down and all dis and dat. People are laughing at you....or should I say (Yo mang mufuckas a bustin yo ass.) Try living your own life. You want to rap? Try using ENGLISH! Try enunciating! (look it up if you have to) and Yo pull your stupid ass pants up. Stop embarassing both races dipshit!

[AliasEternalNET]

@paigerockson Dear concerned friend, We regret to inform you that you are not our first hater, but you ARE very early. Congratulations. To reserve your haters' spot in line, please comment @AliasEternalNET with more of your wonderful ideas. Young Wisdom is not a white guy and his country accent is often mistaken for "talking black". Your mistake. Your forgiven. Peace "brudda"

[jciljciljcil]

The article on sleeping position and keratoconus is in Review of Ophthalmology and the author is Carlson. Google it and you will see the association is strong.

[1jigga1]

i dont know about sleeping positions...but if u rub your eyes... STOP!....it speeds up progression of the condition...

[AliasEternalNET]

@1jigga1 Yes that is very true! Surprising how many people don't know that. I would Retweet you if I could, lol.

[GuAnaKiTo123]

My vision sucks too man...I was diagnosed 4 years ago., after being undiagnosed for 3 yrs..and when i got my RGPs on I felt like a kid with a new toy..I was reading every signed I saw..It was an owesome feeling..my left eye keeps getting worse, I might be getting a transplant soon..keep it up and all blessing to you..saludos!

[RishiP85]

feeling your beats btw, i might do something over one sometime....get at me

[AliasEternalNET]

@RishiP85 Those beats are actually by IQ the Goon. Find his link in the video info and contact him.

[RishiP85]

yeah man I actually have the same condition, hasn't stopped me from rapping/making music either, even tho it can be hard to read the lyrics sometimes when I'm spitting.....we should do a track about K/C man...

[brianparran1]

14 years i know your pain

[darkxoo]

Desde Diciembre 2009. Supongo que cada persona es diferente..... depende de que tan avanzado sea el problema.

suerte!

[rise313]

my eyes are even worse...i gottaget surgery...and am fuckin 21

[darkxoo]

I had keratoconus, just came back from Colombia I got cross-linking done AND lasik, same surgery. The doctor I went to is the best doctor in the world, doctors from US, Europe etc go to HIM to learn. Dr. Luis Antonio Ruiz from Centro Oftafmologico Colombiano in Bogota. I went there because he's excellent and because both my parents got their lasik there. PLUS it's half the price you'd pay here in the US (dollars are worth double there) now I have AWSOME eyesight, HA!

[RadioActiveRace]

Hey man wow i finally found a group of prople who have the same condition i do

ufortunitly i cannot afford the $890.00 to ge t the contacts that i don't even know if i could ware them but yeah i see wut you see and keep up the good track bro oh and yeah i can't even drive i am not allowed

[nielspeed]

Here is a theorie: Obsessief Compulsieve Stoornis. For example: some people who have OCS think that something bad (to them selves or somone they love) is going to happen when they don not do some kind of ritual. What if this ritual is rubbing their eyes? Is it possible that a lot people who have keratoconus also have OCS (when they where a child) but feel to ashamed to say it?

[Yanetta17]

i have this too it sucks

[dimpleza]

me too... Everything I see has halos and is sooo destorted... It's just so bad...

[beltres94]

solo quiero decirte que para eso estan los lentes de contecto duros y no solo te permiten una mejor vision si no que atrasan la evolicion del trauma y otra cosa es que no se ve que tu sufres que keratocono por la camara digital eso es con un aparato especial!!! so no se ve la protuverancia de tu cornea! dahh

[jciljciljcil]

Why do keratoconus patients rub their eye differently from patients with allergic eye disease? Why do they sleep on the side that is worse? Why do they like to have their hands and pillow put pressure on the face near their eye when they sleep? Why do they go on to develop sleep apnea at an alarming rate? Why is the only person talking about this a specialist at the Duke Eye Center?

[aeDUKEwiz]

Whats the Duke Eye Center?

[jciljciljcil]

Located in Durham, NC. One of the doctors there is doing research on keratoconus, eye rubbing, sleep apnea, and sleeping position that seems to make the condition worse.

[aeDUKEwiz]

Thank you very much. I'm always looking into things that can help. I'll try to find him online.

[phatstuff123]

whats crackin badman yo ive got kc init and its shit end off. i have to wear hard contacts on da regs but youtube has made me a aware of intacts whats the shout with dem

listen im a rappa init from manchester so if u wanna collob sometime let me know safe

phatstuff

[AliasEternalNET]

@phatstuff123 Much love, I got a question for you tho? Manchester City or Manchester United??? lol

Message me at this account.

[AdzTurner]

You the man! I've had KC since I was 16. Tried RGP lenses - they kept falling out.  Scleral lenses - I hated wearing them. So now I just rely on squinting when I need to see! I'm 26 now.

[Illbeachef]

Hi, I'm italian, I turn 14 this year and I've keratoconus too.

I got a cross linking a month ago. In september I'll have it to the other eye...

Did you get something?

[AliasEternalNET]

@Illbeachef I haven't had any surgery yet. I did try the hybrid contacts, but for me, medical coverage is my biggest concern. As of today, still not seein well, but thank God. I feel like it has stopped getting worse...

[murtleurkel]

im a ophthalmic tech n the usafr n when i was in training, we would test each other and i gotten the test and they said that i have it. i wish the best for u!

[WisdomVision2002]

Wow, thats a crappy way to find out! I bet you didn't expect to find it that way.

Thanks alot, I hope the same for you.

Peace.

[ConstantC4]

I might have it... got many ghost images for quite a long while now also halos might be other stuuff since Ihaven't checked it yet (7 more days)

I'm 19 so this is the age it pops up . my eye doctor is a nigger (well not a black person but a retard who hardly manages a dos shell in his office) so Ima switch off to another one who knows I might have actually a cataract nokthx so anyway I could use to diagnose it early and do that riboflavin + UV treatment to slow it down.

[aeDUKEwiz]

Thanks alot for the comment. Good luck findin out whats wrong with your eyes. Let me know what it is when u know.

Peace

[ConstantC4]

thanks a lot might be also corneal damage/scar ... (in which case I'm still myopic but it won't progress to bother me beyond this point unless it gets more damage... or maybe heal)

[WisdomVision2002]

That would be good news in a sense, ha? Eyes are a very sensitive body part that nobody seems to notice until its hurt, ha?

Good luck, take care of those eyes.

[ConstantC4]

well it's not there untill it hurts and you notice... no superhuman senses here to forecast the next time Ill have paper-dry eyes or feel like something got inside that isn't there ( started a bit two days earlier then onset of polyopia ... anyway I can sit reletively far from the screen and see fine letters fine so other then eye floaters[like 200 small ones and few big] on highly lit surfaces and halos my vision works..)

[lucyj2233]

hiy i am a keratoconus suffer i have just had the cross linking surgery in germany and i am gonn have to have a corna transplant in july in my left eye but my right eye i had done in germany is absolty fine now oh and A really gd video !! x

[aeDUKEwiz]

Congrats and Thanks! Make sure you come back and let me know how your eyes are!

[chrisas72]

A touching video, one that i can relate to, being a sufferer of keratocous.

[mckdoe]

Your video really relates to me

[messaboutjam]

part 3, things are going well im off work for a month and i still think its the best 3grand ive ever spent.

the prof is the best in his field worked all over the world wrote books and well respected by other opticians. he knows his stuff... go for the op

[messaboutjam]

part 2, so i sourced the best guy in the uk and had a cornea transplant last week.best thing i have ever done i saw an inprovement from the moment he took the patch off to check the eye 5 hours after op. he kinda said that wearing a glass lens is like having a size 10 foot in a size 8 shoe making it do for a while but eventually nackering the foot. its been a week and

[messaboutjam]

hi, love the video very informative for those not in the know.... camera shots of your eye were really good, makes for clearer understanding.

im 28 from the uk and i have keratoconus, it started about five years ago and gradually got worse, i have it in my left eye, it got to the point were i knew i had to do something about it as i believed the gas lenses didnt help but increase the vision at the time but made the eye itself more damaged

[WisdomVision2002]

I thought I responded already, oops. thanks again for sharing your story. Congrats on the transplant. How are your eyes now?

[wiwbib]

good vid...thanks!

[WisdomVision2002]

Thanks for watchin!

[Steven2690]

Do u wear contact lenses?

I do and I can see like anyone else with them on

But I am going to have surgery on them soon

[WisdomVision2002]

I've worn hard contacts since I was about 11 or 12. It was this past year or so that my eyes were so bad that my contacts wouldn't stay on my eye. If I look to the side and blink, there it goes! Ya know? The vision was better than with glasses, but the inconvenience was just too much.

Thanks for the comment

[hbattat]

I have keratoconus too and my vision sucks and the worst is that i cannot wear contact lenses even the RGB ones because I have dry eyes and cannot put lenses more than 1/2 an hour before they turn red and start itching

I was fit with special RGB hard lenses that are surrounded by soft lenses to reduce the effects.

but that didnt work either!

[CoreyDrumz]

very informative brotha. i see you.. can you see me though? lol.

[zndprophet]

I like what you say at the end

"I don't see what you see"

[WisdomVision2002]

Thanks for watchin homie.

Ain't it true though? Even despite my vision, does anybody really see what anybody else sees?

[zndprophet]

Good video. Very informative. Now I understand what this is.