I wish your lovely boy all the very best. My only criticism would be that I thought there was too much contact during the seizure ie bending his arms, touching his shoulders and moving his legs etc but the lady speaking( Mum?) was highlighting this to the others. Mum appeared to be in control of the situation and was obviously following seizure advice for her son. She was timing the seizure and the emergency med was near hand. I don't believe they were putting their child in danger. When a
thanks for sharing my grandson was just dignosed today with partial seizures and need all the help i can get he is 1 year old been doing it since he was 3 months i keep him during the day and hate to see him do this they are putting him on topamax sure hope it helps some of his seizures he cries and some make him laugh he has to stay 1 more night at childrens hospital in birmingham alabama with the eeg hooked up have you ever used this medicine thanks you so much
I just wanted to offer my experience of seizures. Working at a specialized epilepsy residential care home with more than 300 residents I would like to say that each case is individual. We have service users that require immediate medical intervention when a seizure occurs but on the reverse we have MANY that only require intervention after 5 minutes of continuous seizure. There are so many different types of seizure and varying quantities and if we medicated without precaution there would be no
First of all a nurse is not a Neurologist! The DRS say do not administer Diastat until the seizure last for 3 minutes! Which by the way they usually don't! There is no reason in knocking your child out for hours unnecessarily. These parents are trained well. They had the medicine right there and they were timing the seizure. That is exactly what they were supposed to do! I AM AN EXPERT AT THIS I have twins that are 8 with intractable daily seizures! My son has seizures from 4 quads of hisbrain
I would like to thank all the parents and care givers who have had the courage and good will to share their seizure videos with us. Your videos and comments, especially those from trained professionals, have helped us tremendously in identifying the type of seizures our precious angel has suffered through. I also would like to apologize if any of you have been offended by the clueless and heartless comments that have been made by someone who is obviously out to hurt and embarrass our family.
I actualy have prayed for this family and all they are dealing with. He is a well loved little boy as evident in the video. I am a mother of 2 children myself and have a niece who suffers from Down Syndrome and has seizures quite often. What bothered me the most was the mdication sitting at his head while not being given and the lack of oxygen. I would have the same to say to my brother and sister in law if they did he same.
I love how easily you call me ignorant when you have no idea who I am....leaving it to be said that that was an ignorant comment. Then we have the commentof me minding my own business.....if you are so upset over my comments and feelings then maybe they should keep their child off the very PUBLIC internet, where anyone can view and comment.
I am actually an RN, BSN working in the Recovery Room at amajor hospital. My main thought here was that although the father got the medication, they failed to give it to their son, a medication that would have stopped his seizure. Toward the end of the video his lips were turning blue which made me wonder why no oxygen was given. These two reasons were what made me feel some neglect were evident.
I am actually an RN, BSN working in the Recovery Room at amajor hospital. My main thought here was that although the father got the medication, they failed to give it to their son, a medication that would have stopped his seizure. Toward the end of the video his lips were turning blue which made me wonder why no oxygen was given. These two reasons were what mademe feel some neglect were evident.
@MsSabmc. I know this family and I am a social work professor who trains child welfare workers--no neglect here. And your expertise on this very rare genetic condition is...? How do you know the child required oxygen or medication? Only an ignorant self-righteous know-it-all would think a family, expressing such a loving tone, would knowingly place their child at risk in the manner you are suggesting? "Ashamed"??? How about you should mind your own business.
This is a video of our little boy having a breakthrough seizure called a 'partial complex'. Nikko was born with a catastrophic disease known as Dravet's syndrome where there is no cure. Although disturbing, we have posted this video hoping it can help other parents define the type of seizures their little ones are suffering with, just like the videos here helped us. Thanks and love to all for sharing and helping those in search of answers.
I happened upon this video and was outraged that you would put a video of your child on you tube for everyone to see. There is no educational value and you do not even try to treat the seizure but just display your son for eveyone to see. I honestly think that this could be considered neglect as he was not medicated or given any oxygen during the two plus minutes he was seizing. You should be ashamed!!!
@MsSabmc Any kind of epilepsy, including Dravets is all too often "hidden". These videos help get the knowledge that it is okay to talk about it. It is okay to treat people with neuro disorders like normal humans. Fact- The yearly funding for epilepsy research is 38 dollars per year per patient. These videos need to be seen to motivate society to realize it needs more research and more awareness! I thank the family for posting this video.
I wish your lovely boy all the very best. My only criticism would be that I thought there was too much contact during the seizure ie bending his arms, touching his shoulders and moving his legs etc but the lady speaking( Mum?) was highlighting this to the others. Mum appeared to be in control of the situation and was obviously following seizure advice for her son. She was timing the seizure and the emergency med was near hand. I don't believe they were putting their child in danger. When a
3121camille 12 hours ago
Okay, this is a tonic seizure, or pet mal...
tegskkace 1 week ago
What a poor little boy :(
Alexus5499 2 months ago
thanks for sharing my grandson was just dignosed today with partial seizures and need all the help i can get he is 1 year old been doing it since he was 3 months i keep him during the day and hate to see him do this they are putting him on topamax sure hope it helps some of his seizures he cries and some make him laugh he has to stay 1 more night at childrens hospital in birmingham alabama with the eeg hooked up have you ever used this medicine thanks you so much
prestonspoppamac 4 months ago
That is complex partial with tonic clonic activity.
WolfStorm82 7 months ago
I just wanted to offer my experience of seizures. Working at a specialized epilepsy residential care home with more than 300 residents I would like to say that each case is individual. We have service users that require immediate medical intervention when a seizure occurs but on the reverse we have MANY that only require intervention after 5 minutes of continuous seizure. There are so many different types of seizure and varying quantities and if we medicated without precaution there would be no
ljhlmr 7 months ago
First of all a nurse is not a Neurologist! The DRS say do not administer Diastat until the seizure last for 3 minutes! Which by the way they usually don't! There is no reason in knocking your child out for hours unnecessarily. These parents are trained well. They had the medicine right there and they were timing the seizure. That is exactly what they were supposed to do! I AM AN EXPERT AT THIS I have twins that are 8 with intractable daily seizures! My son has seizures from 4 quads of hisbrain
clbansk 1 year ago
I would like to thank all the parents and care givers who have had the courage and good will to share their seizure videos with us. Your videos and comments, especially those from trained professionals, have helped us tremendously in identifying the type of seizures our precious angel has suffered through. I also would like to apologize if any of you have been offended by the clueless and heartless comments that have been made by someone who is obviously out to hurt and embarrass our family.
NikkoTonTonBoy 1 year ago
I actualy have prayed for this family and all they are dealing with. He is a well loved little boy as evident in the video. I am a mother of 2 children myself and have a niece who suffers from Down Syndrome and has seizures quite often. What bothered me the most was the mdication sitting at his head while not being given and the lack of oxygen. I would have the same to say to my brother and sister in law if they did he same.
MsSabmc 1 year ago
I love how easily you call me ignorant when you have no idea who I am....leaving it to be said that that was an ignorant comment. Then we have the commentof me minding my own business.....if you are so upset over my comments and feelings then maybe they should keep their child off the very PUBLIC internet, where anyone can view and comment.
MsSabmc 1 year ago
This has been flagged as spam show
I am actually an RN, BSN working in the Recovery Room at amajor hospital. My main thought here was that although the father got the medication, they failed to give it to their son, a medication that would have stopped his seizure. Toward the end of the video his lips were turning blue which made me wonder why no oxygen was given. These two reasons were what made me feel some neglect were evident.
MsSabmc 1 year ago
I am actually an RN, BSN working in the Recovery Room at amajor hospital. My main thought here was that although the father got the medication, they failed to give it to their son, a medication that would have stopped his seizure. Toward the end of the video his lips were turning blue which made me wonder why no oxygen was given. These two reasons were what mademe feel some neglect were evident.
MsSabmc 1 year ago
@MsSabmc. I know this family and I am a social work professor who trains child welfare workers--no neglect here. And your expertise on this very rare genetic condition is...? How do you know the child required oxygen or medication? Only an ignorant self-righteous know-it-all would think a family, expressing such a loving tone, would knowingly place their child at risk in the manner you are suggesting? "Ashamed"??? How about you should mind your own business.
creoledap 1 year ago
This is a video of our little boy having a breakthrough seizure called a 'partial complex'. Nikko was born with a catastrophic disease known as Dravet's syndrome where there is no cure. Although disturbing, we have posted this video hoping it can help other parents define the type of seizures their little ones are suffering with, just like the videos here helped us. Thanks and love to all for sharing and helping those in search of answers.
NikkoTonTonBoy 1 year ago
I happened upon this video and was outraged that you would put a video of your child on you tube for everyone to see. There is no educational value and you do not even try to treat the seizure but just display your son for eveyone to see. I honestly think that this could be considered neglect as he was not medicated or given any oxygen during the two plus minutes he was seizing. You should be ashamed!!!
MsSabmc 1 year ago
@MsSabmc Any kind of epilepsy, including Dravets is all too often "hidden". These videos help get the knowledge that it is okay to talk about it. It is okay to treat people with neuro disorders like normal humans. Fact- The yearly funding for epilepsy research is 38 dollars per year per patient. These videos need to be seen to motivate society to realize it needs more research and more awareness! I thank the family for posting this video.
WolfStorm82 7 months ago