Recent Advances in Complex Regional Pain Syndrome CRPS RSD DR. Joshua Prager

[davidsons4]

Thank you for this post

[emmazoey2]

@Thattergirl I have RSD too and also have trouble with a burning red face at times. Sometimes one side only. No doctor has connected it to RSD, but I think it is. I am so depressed right now... getting worse, and can't find a doctor or treatment plan that are working for me. I need help; I don't want to live like this anymore.

[BeadinRSD]

Thank you Dr.Prager, if more people would see this then maybe they would understand a bit more. Ive had this for 6 years now, I do infusion therapy and I am finally out of the wheelchair; I fight everyday to stay out of it too.  God Bless you!

[cbsapphire66]

ive another question, if someone can help. if im able to bear the pain to go to gym, is there any chance i can make things worse? this syndrome seems to be so unknown!

[cbsapphire66]

hi, i found this video interesting, i have had this syndrome for 4yrs and finding no drs/specialists are familiar with this syndrome. im wondering if anyone could tell me if there are people suffering from this condition in queensland, australia, and how they are coping with this horrid disease.

[Thattergirl]

i got a question. I have RSD for the last 6 years due to a accident. Since a couple of years i have unexplainable pains in my stomach after a inflammation. The pain is getting worse and worse overtime to the point i can't handle food anymore. The doctors just simply tell me that i have to stop complaining. But at this point i have lost weight, sometime it feels like that my face is on fire and much more. use no medication. Can this come from rsd and what to do about it? thanks!

[cindiloohoo552]

I have tears. RSD/CRPS was so hard for my doctors to dx. Now, due to CRPS and RSD, I fell and broke my upper arm and shoulder and have titanium plates and rods in my arm and shoulder.

So much .. so late. ~Cindi Lowe, Ohio. USA

[mattman4020]

I'm currently in remission from this HORRIBLE condition. I was also hooked on the pain medications (Oxycontin and Percocet mainly, fentanyl patches were also used).

Anybody who goes through this disease... PLEASE be careful and always keep a positive outlook. It's so hard to deal with.

[The69Stickman]

@mattman4020

Well Matt as you said you got hooked on the Oxycontin, the only thing I can say about that is you did not need it with your pain because if you did you would not have got hooked on it. If you go into the drugs and pain, if you need the drugs you will not get hooked on them, that is a fact.

[mattman4020]

@The69Stickman I disagree. There are plenty of people who get hooked on the opiate drugs they're prescribed. That's why legitimate pain patients sign a "narcotics agreement" when you go see a pain management doctor.

It doesn't matter who takes these drugs, legit pain or not, you WILL get hooked on them. Maybe saying "hooked on them" isn't the correct terminology. i'll put it like this... if you take these drugs for longer than a few months, you will experience withdrawal getting off of them.

[catshumpcats3]

my mom has this in her right arm her pain is so severe she cries i feel bad

[philruff1]

I have had crps or as it was called rsd from 1996. I now go to Walton Centre Liverpool England. And what you said is just being talked about and I have had some tests and hope to have more, to help with the research. My crps started in the left arm and now is in most of my body. We need more people like you here to get more doctors to understand crps. Thank you for speaking out about it.

Philip Ruffley

[Zakkman1803]

Thanks For Posting This Video

[fredisready]

At last the medical field is taking crps patients serious!!!! Hooray we are not going crazy with this horrible condition

[The69Stickman]

@fredisready

Well Fred if you are in the USA yes , or in Germany, but not very many at all in England.

[usecori]

I've had CRPS for over 10 years, maybe longer. I thought everyone had burning limbs. It blows me away that for all the doctor visits (neurologists incl), that NO ONE asked me some basic questions that would have helped so long ago. When I started to have some serious internal symptoms, the specialists refused to believe me until my leg became paralyzed. I've had it with doctors who take our $ and don't bother to research an illness.

[neomilly]

My 17y old son is suspected of having this..5 months now. I'm doing as much research as possible.I need to know treatments.....what can he be doing. What about massage the Unaffected areas...this most helpful vid.....thankyou so much

[TheMarianneRose]

@neomilly .

My daughter was diagnosed 8 months ago. The doctor said they couldn't help us. She couldn't tolerate even wind moving over her leg. We started doing Reiki, EFT, Kinesiology balances and Acupuncture. She is now so much better and we are expecting her to be completely well very soon. Try all the alternatives. They really work. Wishing all sufferers well very soon.

[katesRSD2000]

Thank you for posting this video. I've had CRPS for 9 years and the information and education that is available now is so much better than it was just 9 years ago. I understand my condition a lot more now, and watching this video has really added to my understanding.

The fact that the non-effected limb reacts the same as the CRPS effected limb when the CRPS limb is touched, is new information for me and I find it amazing.

Thanks again

[dselford]

Thanks for the update. Good to find out they are tracking down the central and peripheral changes. This should really propel research on treatment. And hopefully hush the judgmental "it's all in their head" group.

[manzfamily]

I think this video provides great information for RSD/CRPS sufferers and their doctors to discuss. Thank you for posting it!

[Angelgirl712]

thank you for sharing this and keep updating us more about CRPS/RSD. we need to find a cure for this horrific disorder. I was diagnosed with causalgia in Aug. 2008 and also have JRA. We need to end chronic pain..too much pain.

[patzarellina]

Thank you for posting this video. I have RSD/CRPS for over 5 years......