EDS and FMS Part V

[pamhoag]

Thanks

[vivisonga1111]

im a zebra too... xoxo

[BenNCM]

you are very inspiring!

[roethlisberger1229]

i have that too, my family doesn't believe me, as much, they see it in my skin though it stretches really far.

[wernhead60]

heard of any people with EDS on SSI my sister gets it for fibromyalgia

[evvofreak]

I suffer very painful and frequent migraines and I totally get it when you talk about people not believing you. And I know about the pain, the lack of energy, the foggy brain, the missing out on life... Chronic pain comes in many forms but it's effects seem pretty similar in people.

I wish you all the best. You're obviously very bright and you've got a lot to give the world...

Take care ;-)

[lotsandlotsofducttap]

hey just look at the posstive stuff then the negative parts in your life and it should be better... hope you get better...bye

[jjsrosie]

i have eds and it was triggered after i got lymes disease. i have NEVER met any one with it or talked to any one. so if u have it please talk to me so i can feel understood

[Rekisum]

Ouch... i'm thinking. I've dislocated shoulders, toes (wierd thing) and a ankle that also broke severely and were put back together with metal. Well... i'm still feeling lucky compared to you... very. It's not very often that im injured... it happens though.

Youre stronger than me... no doubt... inspiration is the keyword here...

Thanks for the video!!

[DancerInside]

hey i have EDS and all of my joints dislocate daily and i know wat you mean that you dont care... type three sucks everyone of them sucks and i have also lost friends from it... the only bad thing is i will get arthris soon and im younger soo its sad but life is hard just do things you enjoy.  Bye!

[xshineythingsx]

I have ED but i dont know what types... In britian its SO hard to find anything out about it cause no one has heard of it. My college are also considering asking me to leave cause i'm a liability in their eyes. Heh loosing the will to bother with it now =( Had all the ecg's n i see loads of doctors every few months. Any advice?

[ihateyougothlove]

i have EDS too.. i got diagnosed with hypermobility type but i am getting biochemical testing to check for Vascular Type.. i have to go get a EEG and get admmited to our hospital because we think i may have a form of epilepsy.. can you put your hip back in place if you dislocate or subicate? just curious... sorry about my spelling and typing i hurt my left hand so i have to type with one..

[guyfromjaxx]

my son has this. his life has been hell. he is now 24 years old. they had to put two rods in his back. he cant work. he is in pain every day.

[hahadillonsface66]

lol i have EDS but i don't suffer any pain cause I've dislocated my joints so many friggin times

[2thpix]

Your friends probably believe you but they have no idea what kind of pain you have and how it affects you. I have fibromyalgia/chronic myofascitis. I totally understand you. You can't think straight nor do anything when you are in such pain. No one understands that except we chronic pain sufferers. I think females can relate a little to explaining "its like menstrual cramps all over your body." Bless your heart, I hate that you have to go through this starting at such a young age.

[xshineythingsx]

That is EXACTLY how i'd describe it!

[cissysophie]

your a very strong lady. i was never diagnosed with eds but i can dislocate my arms...very strange..i also have fm/cf..thanks. cs

[psychopopek]

You described the whole disease very well I have EDS and I would love to talk to you about where I am with the disease please contact me ASAP

love

Danielle

[ZoeyMacaroni]

Hi, Have you ever tried that glucosamine or zinc or cod liver oil?

[nocurenopay]

if she really has EDS it shouldn't be a problem showing us some tricks that only people with EDS can do, right?

[0Della0]

You wouldn't ask a person with Epilepsy to have a seizure in front of you just to 'prove' they have it; proving the existence of, or non existence of, EDS or any other medical condition not easily detectable to the naked (and untrained) eye, merely to satisfy a complete stranger, is completely inappropriate.

[nocurenopay]

A person with epilepsy can't have a seizure on command, a person with EDS however can show you the effects of the disease. Whether it's rude to ask is another thing, you're right about that.

I'm a medical student and I look at it with a medical view. In this case, things just don't seem right to me. The medication seems aspecific and not prescribed by a doctor, just things you can buy at the pharmacist without a recipe or order on the internet. And the way she talks about it, just not right.

[juleni]

Nocurenopay, your use of the word 'recipe' rather than 'prescription' tells me you're not American. In America, the medication she showed in part 3 of her video series included several specific prescriptions which could not have been bought over the counter in America. While in India or Russia, most meds can be bought without scripts, in the USA, her meds are prescribed. I am concerned that you express wanting to be a doctor!

[psychopopek]

Thank you

[Canichenoir]

I can not believe you. I have EDS and if you came up to me and said that, I'd probably sock you in the face! It's nice to be able to contort yourself to settle bets and show you have a talent because you can't do a lot of sports, but Oh My God! What the hell kind of medical person will you become. Pain hurts so bad EVERY DAY of your life. Get Real and be tolerant.

[psychopopek]

NO moron

[ShinyShirts]

Nocurenopy,

Yes, I can move my fingers about in ways that shouldn't be possible, but I'm not about to forcibly pop my fingers and other joints around just to prove that I have EDS. Any damage that I do to myself can become permanenent, and I don't want to take that risk. I wear finger braces now to keep them where they belong.

I've been diagnosed with EDS type III by three doctors, including a specialist at the University of Michigan.

[youngmoodyfan]

Amazing. You don't sound selfish about complaining; you sound human. Pain sucks, and having people not believe you is worse. (My family's behind me 100%, but I know how it feels to not be believed, by mean gym teachers and so-called "friends") And don't listen to "nocurenopay".

[malory55]

You are so cute and I can so relate to what you say about people who don't believe you. I have never heard of EDS but I have fibromyalgia and it can be so dibilatating at times. Swimming helps and I am doing better with God's help. There is hope and I share it on my video. I would like to invite you to visit my channel whenever you get the chance.

[nocurenopay]

I'm not convinced you really have EDS... show us someting you can do with your joints (e.g. fingers).

[YourLordVicious]

Have you been typed? I am a type three myself.

[youngmoodyfan]

Me too. I was typed three when I was diagnosed, anyway, cerca 1990. Since then I've heard that typeing system is considered outdated; my doctor told me now I'm just considered "hypermobility type". Oh, why must they make it confusing?

[SuperAshZilla]

wow... you are amazing...

we must talk more. well, at all, really.

=]