Added: 11 months ago
From: LesliDW
Views: 4,296
Sort by time | Sort by thread (beta)

Link to this comment:

Share to:

All Comments (25)

Sign In or Sign Up now to post a comment!
  • This made me cry

  • I am very emotionally moved by your beautifully made video. God bless little Ayla and your entire family. Thank you for sharing Ayla's story and many blessings for a healthy and pain-free future.

  • Enbrel was what help me to i was in remission for eight years ! with that medicine

  • I have ra but i was dia at the age of 2 i am 22 now god bless her and you i was on all the drug they had out none have work so far i just started orenica because the other i have a reaction or they didnt work if you ever wanna chat contact me GOD BLESS

  • @countrygurl2009100 I NEVER BEEN IN REMISSION BUT I AM GLAD SHE IS

  • Hi! My name is breanna, and I have juvenile rheumatoid arthritis, I was diagnosed at two, I have uveitis and because of this I am unable to get of my methotrexate. I am on embrel and humairia also. I am 13 now and looking at remission when I am about 17. She is addorable and many people do not realize how hard it can be sometimes to live with arthritis. Best of luck!

    -bre -3

  • to deal with this "devil disease"! God bless you Ayla, and I really hope she fights this and goes into remission forever!

  • I can not stop crying as she is such a beautiful little girl and to see her in such pain is horrific. My son is 6 and has JRA. He is in pain a lot but nothing like Ayla's! I feel for her as well as her family. My son vomits all the time and has migraines frequently. Sometimes, he can not walk and still at the age of 6 and a half can not cut or write with his hands. He is now complaining of his shoulders. Here is praying that they come out with a cure for arthritis as no human being should have

  • My now three yr. old was diagnosed at 22 months. We're also going through the methotrexate stage. It brought years to my eyes to see your princess dancing. I have faith that she will dance for many years to come. Thanks for raising awareness!

  • That video breaks my heart. My 13 year old was diagnosed a few months ago. I couldn't imagine dealing with the same thing with a toddler. At least I can explain the pain, the needles, the medications to my daughter…and while it sucks…she gets it. Your daughter is beautiful…I pray she can live a life without pain. It isn't fair for kids develop this painful disease.

  • Ayla, you a are a wonderful and beautiful little girl! I'm so sorry that you and your family must deal with this disease. I'm 35 and I've had RA for almost 7 years (it took at least 2 years to officially diagnose). You and your family are in my thoughts and prayers!

  • I was diagnosed at 15 months, I'm 30 yrs old now. I'm tired of people confusing JRA & RA with Osteo. Sorry, but guess what, I'd KILL to have "aches and pains/osteo arthritis. This is NOT Osteo. This is a DISEASE. This is a MONSTER. This is a BEAST. Your daughter is an ANGEL. Your daughter was me. She'll be ok though, that's the thing. She will. Contact me if you'd ever like to talk...

  • Wow...to start so young with this disease...so glad some help was found...wellness hugs, always...Love your spirit, Ayla and family...and loved the music! God Bless...

    There are so many of us out here, RA survivors....we live on...we need support and understanding though, especially the kids like you Ayla..GG Author,

    non-profit book Autoimmunity Counterattack-A Sequel The Healthy Road Back!

    As Montel Williams says, "We may be sick, but we are not weak!"

  • Thank you all so much for your kind words and support! God bless all of you!

  • Ayla I hope you get better soon! I know how it feels its painful and just horribles but the juvenile arthritis will get better slowly :) for all the other people out there who are like Ayla and I please help. I'm 15 and with only another two years of school left I had to stop dancing which is not a good thing when your in a dance school and company. So please help and good luck to everyone in the feauture <3

  • If you go to you tube and type in the search bar: arpwave, there are many videos to watch. All the best to you and your family.

  • Hello to Ayla and her parents. You really need to look at a company called ARPwave. They can absolutely help your child with this, with out drugs or surgery. We believe so much in this technology and company that I quit my nursing career of over 18 years to come to work for the company in getting the word out that this technology is available. I have seen the results myself. Take care

  • It's hard to see your child suffer.

  • its so hard for me to watch these videos without crying because i think of what i have to go through & what i have been through

  • Those dang steroid shots!!! I am 13 and I have spydtroathparhy. That is my root disease, because I am positive in the b-27 tissue but I also have polyarticular jra, and I take methotrexate, embrel, and humaria. Along with other pills, many say the age between 11 and 14 is the hardest, I am agreeing so far:) best of luck!!!

    ~bre~

  • ive been living with JRA since i was 2 1/2, im 17 now & honestly seeing this makes me cry. god bless youre family & stay strong ayla, we can get through this together<3

  • i can't take any of those shots methotrexaite made me very sick & enbrel made my immune system low putting me in the hospital

  • Sweet Ayla may you have many more good days than bad.. : ( God Bless .

  • I have Arthritis and I know how painful mine gets, my wrist will lock up my fingers and toes and angles and knees will hurt so bad it is unbearable. My heart felt prayers goes out to your beautiful little daughter. and May God's Angels watch over her and May she stay pain free. God Bless!

Loading...
Alert icon
0 / 00Unsaved Playlist Return to active list
    1. Your queue is empty. Add videos to your queue using this button:
      or sign in to load a different list.
    Loading...Loading...Saving...
    • Clear all videos from this list
    • Learn more