Inside Todd's Head

[teddy35martha]

I was diagnosed with the same syndrome about two months ago. Dr. Clough Shelton is performing the surgery on the 30th of this month. I am both relieved and overwhelmed. I have read through your blog and it gives me hope. I don't know what to expect. I'm not scared, but just anxious to get better. Did you experience a lot of pain from the craniotomy? I would appriciate any advice from you. Thanks Todd! Ii was glad to read that you are doing much better:)

[ToddBradley]

@teddy35martha As far as pain goes from the craniotomy, I did have some pain afterward. The surgery cuts through one of the big muscles for the jaw, and so that muscle was pretty unhappy for a month or so afterward. As an aside, I've heard women do better with it than men because their jaw muscles are smaller.

[MostCamperKills]

This is very fascinating. I came here because I heard of this on an episode of Grey's Anatomy haha. Very cool video.

[ToddBradley]

@MostCamperKills I'm glad you enjoyed it. I look at it now and think what a terrible video it is from a videography standpoint, but I think that just goes to show how bad of shape I was in when we made it.

[MostCamperKills]

@ToddBradley

Haha, no I don't think it's terrible at all--it's creative how it's done and the resolution is clear and good sound quality. Also this video is the only one that visualizes for the viewer and really immersize. The vision bouncing was something I experienced when I had a sinus and ear problem--I could feel that one like it was real. Thanks for sharing your story!

[Jbluvr1997]

Bless his heart :[

[ElleBieber7]

I'm only 13 and I might have superior canal dehisence and I have the same problems as you I hope your surgery worked

[ToddBradley]

@ElleBieber7 Hi, ElleBieber7. I'm sorry to hear you have the same inner ear problems. The surgery worked perfectly for me. I hope you are able to get your ear problems fixed, too.

[OmegaRiver]

Do you feel that the sound is not as Pleasant as Before? I mean, when you have sensibility sometimes is good... you knoW? Just to know how are you now.

[ToddBradley]

@OmegaRiver I think sound is just as pleasant as before. In fact, it's more pleasant, because now I don't have other sounds interfering.

[OmegaRiver]

How are you now Todd?

[ToddBradley]

@OmegaRiver Hi, OmegaRiver. My right ear is great now, and I don't have any of the problems with it. Unfortunately my left ear still has occasional problems. That's the side that didn't have surgery.

[haydenman2]

Hi Todd I have the exact same thing we caught it on a CT scan they originally thought I had cancer but luckily I didn't , I have so many questions , what causes this , why did your tinnitus get worse post surgery (mine is very loud already) , how is your balance (if I shut my eyes I fall over) is there anybody you would recommend to do this surgery any information you have would help me so much , nobody else knows what I'm talking about we I see a doctor about this, thank you for posting this

[ToddBradley]

@haydenman2 Hi, haydenman2. Give me a call at 720-480-4890 and I can answer all your questions.

[libouban]

Hi Todd,

I never would have guessed the supreme ruler had this kind of affliction. That's one creative and courageous way to show what's it's like. The music at the beginning keeps it light and a bit detached. Thanks Todd. (O.)

[ToddBradley]

Yeah, I asked a musician friend of mine to make some cheesy electronic music from a Casio keyboard, and he hit the nail on the head.

[bradleychun]

Hey there Todd. Thanks for posting this video. You have nailed exactly the way that I feel every day for the past 3 years. Now I can share to others what I'm experiencing.  I'm contemplating having surgery as well. Could you post a video about your surgery experience? Thanks!

[ToddBradley]

Hi, bradleychun. I haven't posted a video about my surgery experience because I've been too busy working on other more interesting movies the past few months. My whole story is pretty thoroughly documented online on the SCDS support web forum, though. Send me a message if you think you have SCDS (aka SSCD) and haven't joined the web forum yet.

[misspoppy316]

Great job. You nailed it.

[bapartin]

It's much more effective with headphones. God, that sound in my right ear gave me a headache after just 5 minutes. I'm sorry you had to experience that for so long.

[zoomproductionsLV]

I watched this with head phones...crazy! I can't believe this is what you were living with.

[ToddBradley]

Yeah, you can see why I was having a hard time doing sound production and post-production!

[gardenia1953]

Todd, This was painful to watch and listen to having just had the surgery myself 12 days ago. Not having the autophony anymore is wonderful!

[ladythunder66]

Thanks for posting this! I'm also a sufferer of SCDS, and for the longest time, I have tried to describe to my husband and family what I've been going through, but I don't think they quite got it.. until today! lol..

I have the dizziness, brain fog, and disequilibrium as well, but you really nailed the nystagmus for me!

How are you feeling now? Are things good?

[ToddBradley]

Yeah, my autophony symptoms are completely gone in the ear that was operated on. I still have some mild intermitten autophony in the other ear, and some mild nystagmus from that, too. But the surgery was a complete success, in my opinion.

The only side effect has been that I have ringing tinnitus in the operated ear, louder than before.