Hi . This is really hard for me because I had a daughter when I was 18 and I was so immature. My little baby was a cystic fibrosis newborn. I knew nothing and doctors knew little but were hoping to learn. Janelle(my daughter) was so severly affected (lungs and digestive) So Sorry I do not think I can say much more. I just hope to god that child of mine can forgive me for all the horrible mistakes I made
i have cf two of my freind hade it both died when i was in the hospital i am now thirteen and i am i the epic study and i am one of the top 10 kid who have it in dallas texas area adn i hop all the kid who have it will do better than the curently are
Hi i am doing a power point and floor speach for my human anatomy class on cystic fibrosis.I was wondering if you have any comments or anything you could share with me. It is such a terrible disease and i hope you are doing well.
I have cystic fibrosis and I just want to let you know that this is one of the most inspiring videos I have ever seen. I love it and I promise that I am probably half the views :)
In September 2012, 4 friends will try to defy all odds in a unique cycling challenge. Cycling from Hastings to Barcelona and Back! 2000 Miles, 7 days, Non-Stop! All to raise £50.000 for Cystic Fibrosis Trust.
I'm currently doing an assignment on degenerative diseases and even though this video didn't increase my knowledge on it, I will still say "Good luck to all you people with CF out there! Your time will come and the disease will be purged!"
my brother was born with cf. he wasnt diagnosed until he was 10 months old. he died 2 weeks later. my sister was born 2 years later, and she was diagnosed with cf as soon as she was born. my mother saved her life by being strict with her treatments and medication. she is now 28. the road hasnt been easy, but she has still got alot of fight left in her! i plan to make it my job to help find a cure....FAST!!! God bless you all x
I am fifteen years old and I was diagnosed at two months old. CF has ruined my life but thanks to the amazing friends I have, I am able to make it through every day
i just lost my best friend to CF he just turned 26, he is actually the guy that is in a lot of my videos (chris) he died 3.3.2011 @ 1:45 PM RIP chris ...love ya and miss ya bestie
Well that was beautiful. It gave me chills. I'm 13 and have CF but its not too bad right now.. I just escaped from the hospital after 2 weeks! I was diagnosed at seven and was told i was going to die that day and here i am today!!!
This video is truly breathe-taking. I myself am I sufferer, although I consider myself mightily lucky. I've just had a lung function to which I had an FEV1 of 101%, I don't know what you guys measure it in but that's the highest I've ever achieved. Which is more than could be said for my sister. Who is still fighting for her life due to not being diagnosed early enough. She's never gave up. And she's the inspiration for me. Don't ever give up people. The cure could be just around the corner
how could 5 people honestly dislike this? really?
this is so sad i hope they find a cure for cf. i am personally not affected but i know this girl who has a brother constantly in the hospital and in so much pain; missing childhood. :/
I made a video that is on the front page of my channel called 'ditalydo' that is of my nine year OLD WITH C/F SHE OIS VERY EXCITED TO FIND THAT THERE ARE OTHERS ON HERE WITH HER DISEASE SHE HAS NEVER KNOWN ANYONE WITH IT SO PLZ SUBSCRIBE TO ME SO SHE CAN CONVERSE WITH YOU ALL OR AT LEAST ENJOY YOUR VIDEOS THANK YOU...DEANNA AND SADIE AKA (SARAH)
I cried so hard, my boyfriend has CF and is currently in the hospital right now, He better never give up on the fight, I will help him fight, I will help him live. Everyone with CF I am sorry for you all it is a terrible disease for you and your family and everyone who loves you, Hold on please, for everyones sake, but mostly hold on for you. :) Hold on all of you, and R.I.P for anyone who has passed away. :(
I was diagnosed at the age of 2 years, no one really knew waht was wrong with me I slept all day, today Im 19 years old proved the doctor wrong he was convinced that I wouldnt see my 5th birthday, Im feeling like nothing in the world is wrong I got a lung function of 70%+ and yet I dont go to the doctor for any treatment anymore I believe that I cured myself by simply believing in the Lord above and living life like every other normal person.
You can do it to you just have to believ in yourself
i have cf im now 21 and i was diagnised at 3 months and living with this is hard im in the hospital as of now ive been here for allmost 3 weeks its hard for me i wish i could breathe
allso wish my blood suger would stay normal but im not worried about me i wish they would find the cure for the kids i remeber how hard it was for me and no one that young should go through that id rather them cure are future
i have cf im now 21 and i was diagnised at 3 months and living with this is hard im in the hospital as of now ive been here for allmost 3 weeks its hard for me i wish i could breathe
allso wish my blood suger would stay normal but im not worried about me i wish they would find the cure for the kids i remeber how hard it was for me and no one that young should go through that id rather them cure are future
I have two kids with cf and they are absolutely precious. I know that God knows the very number of their hairs and prayer changes things. Seek the Lord daily for guidance and strength and He shall be there. He will never leave you or forsake you. That's the Gospel Truth.
i was diagnosed at 3. it has been a struggle but i didnt really notice it as a problem until i started high school. trying to balance treatments, friends, school, and other stuff go very complicated. and because i chose other stuff over treatments sometimes my numbers are in the high 20's. now im realizing how important it is.
i was diagnosed at 3 months...i had problems from day 1...the doctors where i lived/ and still live ddnt believe my mom when she told them, hey somethongs wrong she eats every hour of every day and she has gained one pound...she finally went somewhere an hour from where i live, and immediatley did a sweat test to see if i had it and obviously i did..i am now 17 and my lung funtion is at 90% and im so grateful to be alive considering all ive been through,,,i hope and wish and pray for a cure soon
@Rainee13 hello, I am Jena. I am determined to find a cure just as much as you are. my cousin had CF. he is 8. & mu hero. I hope youe live your life to the fullest. follow your dreams, please. <3
As a computational scientist and CF researcher, I would first say that there will be no cure for CF until we learn how to compute complex biomolecular systems. No ability to compute, no cure, period. But I have good news - I have made a fundamental discovery about how these computations can be done. To learn more visit my channel, you will find links to my website there. To help in this effort, simply link to me. Together we can beat this disease.
im 29 and have been diagnosed with CF from the age of 1. the one thing i can say to people here is dont let CF get u dwn, its something we must control and put up with but never let it dictate life!! those days when the lungs feel free, live life to the full, enjoy it! one thing ive noticed bout CF sufferers is that we all have the same smile on our faces, never let anything get us down! Im running a marathon in dublin in oct, if i can do it so can u!! Keep fighting and never give up!!!!
I'm 20 and was born with CF. Then diagnosed at the age of 13 with the Diabetes that goes with it. I take insulin shots, breathing treatments, and several other medications everyday. When I go out places, I cough and use tissues all the time. Some people give strange looks or may try to stay away. They don't understand what CF is and what it forces us to go through. The age expectancy of those with these diseases are around 35-40. Everyday it's a struggle just to try to stay healthy enough.
I have CFRD (cf related diabetes) and am looking for a tablet instead of insulin - do you have any suggestions? I would be very thankfull if you helped me! - I'm 14
skullsforkorne... i now understand that u are a hateful internet mongrel??!! that explains the past comment!! im sure u must lead a very forfilled life posting hurtful remarks... i just hope nobody takes u seriously!! there will be a cure for cf oneday.... 4 ur hateful attitude towards life there will never ever be one.... with luv frm a cystic fibrosis sufferer who will never give up!!!!
You sad, pathetic little person (Skulls) - you obviously are such an ignorant individual and if your comments are to cause provacation then suggest you go elsewhere. You have too much time on your hands and, for your information, there WILL be a cure found!! Now, jog on and get a life you saddo.
@SkullsforKhorne Learn to English? I absolutely love the irony in your comment. I hope in the year since you've posted this, you've learned English, matured, and actually gotten love from your parents. Good day to you sir, and quit being so hateful.
haha u sound like a lovely person... truly u do... i have cf... and if i am "subpar" to people like u thank god 4 that!!! do u really have such an unispiring awful life that u feel the need 2 make such an awful comment??!! ur friends are very lucky 2 have someone like u... im sure ur a total ray of sunshine 4 them??!! mate, i feel sorry 4u.... i have cf and im proud of it.... ur comments make me laugh, u are small minded and obviously not very bright!! good luck with that, u seem like u need it
@SkullsforKhorne Do you like to make people cry? I've had CF my entire life and will live a more successful life than you will ever dream to have if you have an attitude like that. I'm sorry if you were ignored as a child, but please take it out on us.
i was diagnosed at 6 months...but had problems from day 1...doctors wouldn't believe my parents and said that i was just a small baby who had really disgusting nappies and cried a lot lol...now i'm 18 and my cf is better than it has been but my lung function is only 40%...so everyday the one wish i have...is to be able to breathe...and i wonder what it's like to be able to smell fresh air and go up the stairs without having a coughing fit....but i am hopeful of a cure...i just hope its here soon
@aislecheeks i was diagnosed when i was four. i was in foster homes up until that age, so no one really cared. my adoptive mom knew what it was and the doctors didnt believe until it was the last result. my PFTs are in the 70-90 percentile. i hope you get better, and i hope i never get there. my one wish is that CF never existed. i want to come home from school and eat without pills, i want to go to bed without treatments, i want to breathe like a normal kid. i want to live. i want to be free.
@kaykayeem I think the most important thing is to exercise. While I was at school, we had to do PE/Games twice every week. Once I left school, my lung function plumetted, I used to be around 70-90% as well. Tablets and nebulisers don't bother me at all - those are the easy things. What bothers me is hardly sleeping because of overnight oxygen and feeds. Worst thing is the state of my body with a 10 year old port-a-cath old tummy tube hole and new tummy tube below that hole steroid cheeks etc
@aislecheeks i am so sorry. i know your probably tired of hearing that but i truly feel horrible that some people cant get a cold and not have to go to the hospital.
it made me cry. Im sarah im 13 years old and i was diagnosed with cf when i was born. i was not suppose to live this long. ive lost a friend to cf her lost her fight. I am not going to lose my fight! i refuse to let cf kill me. tears are rollin down my face rite now. dont ever give up fight!
@mewant2win Thanks for sharing. Your friend is still with you. Stay strong and all of us CFers will be living long lives soon. Continue to pray and have faith it will be sooner than later. God Bless
my boyfriend has Cystic Fibrosis and he is 15. he was diagnosed with Diabetes in January '09. everyday for him is a struggle and i'm scared to lose him. i hope someday soon we will find a cure for both diseases.
this is a awsoem viid i love it when i was born my intestins expoled and i was diginosed with CF although i go though it every day i wish i i could help others to get them though it ! but the thing i hate the most it all the coufing !! sry i kind got off topic but i love you all for going though it with me !!!!! thanks
im lucky i as diagnosed when i was 2 months old^^ im 14 now and my doctor says im one of the healthest cf kids shes ever seen...but thats only becausr i was diagnosed at such a young age-_-
@5ta46az3 I'm lucky as well, I was diagnosed when I was born, and only have to do the mimimum CF treatments. I was even taken off a breathing treatment just recently.
This is very good video. Brought tears to my eyes, because I can relate to those wishes. I was diagnosed when I was 15 with CF. I'm 18 now and everyday is a battle. I'm scheduled for a lung transplant next year and I'm looking forward to it! Wonderful video and I pray for your friend's Daughter.
my best friend passed away 7 months ago from cf. without a doubt the hardest time in my life. seeing what he went through, i pray for everyone with cf and pray for a cure.
=( I was tested for cf, cause I'm pregnant, and today they told me I am positive..don't know if my husband is positive or negative....I'm scared to pass it onto my child!!
i doubt you husband will have cf too. the only way your child can have it is if you erm.."made the baby" with another CFer. i have it and i'm 13! diagnosed at 7 months old
my close friend had cf. he was like a brother to me. he passed away this last year. every day a pray for a cure so no one else has to go throught what he did.. DONATE!! DONATE!! DONATE!!
i have cf and am 15... and can i say this video is great well done but if only the wish was true :( and it would be great 2 if it come on tv ever were to let ppl knw wt cf is and go and look it up (PLEASE PLEASE DONATE YOUR ORGAN'S :) AND MAKE THE WORLD A BETTER PLACE) :)
Cystic fibrosis. I worked as a teacher in a childrens hospital here in Canada and nothing, nothing bothered me more that observing what kids with cf have to contend with. A moving video.
I don't know anyone personally with CF, how ever the song 65 roses by the wolverines is so touching it brings a tear to the eye every time I hear it, so I wanted to learn more, to those suffering I wish you all a long and healthy life, and here's hoping for a cure soon...
I'm not advertising, but please do subscribe to our channel.
We are two people who are going to be raising a lot of money for the cystic fibrosis trust over the next few months our first challenge is walking 20 miles on our own dressed as 118 118 lol.
He is still alive today, holding down 2 jobs and is showing no way of detoriation, i believe that it was the fact that he got out there and had to work for hiself that he survived with CF
my uncle was born 50 years ago, he kept on spluttering and sometimes blood came up, and doctors were convinced it was because he was smoking, nobody knew what was wrong with him. He wasn't smoking but the Dr's didn't believe him.
Becuase no-one knew what was wrong with him, he left school at 16 and went straight into work, he was an engineer and was even accepted into the RAF.
It was only when he was in hospital for something completely different when they found out what was wrong with him
I have lost too many young beautiful friends to this atrocity. The video was very touching and the song was....perfect. Thank you for bringing awareness to C.F.
Yes, we need generous and brave families to partake in organ donation. I applaud your video! It should be seen on TV so everyone is aware of Cystic Fibrosis. It is not just the letters C F , or 65 Roses, but an actual disease . Bless you!
Hey ya`ll im karson im 17 with cystic fybrosis ive acomplished somthing not many childeren with cystic fybrosis can do i have started bullring ive been riding for 3 years now and nothin is inpossible if you take care of yourself and put your mind to what you love to do
My sisters boyfriend and probaly some day husband has cystic fibrosis. Hes actually one of the coolest guys ive ever met. All my sisters friends told her what if some something happens to him how are you going to deal with it. they told her not to date him cause it could be soo hard but she kept goin and stayed with him, i am so glad hes a part of my sisters life. and i hope he stays well for along time its such a scary diesease
believe it or not, I actually know a guy who has CF and he's turning 50 soon!! and another guy he's in his 70's and he has CF! that's how I know I can make it with this disease! sure, i might have to have a lung transplant one day...
but I make the best of my life! have any of you heard of the Sunny Shores Sea Camp???
My sister has CF, she's 12. I feel so bad for her. The things that poor girl has to go through everyday...
There truly is no God, for how could he intend for people to suffer in this way.
Videos like this make people forget the little problems they get in life that they all complain about, and think of people who really do deserve their thoughts.
horrible disease, doctors thought my brother had it as a newborn. luckily he did not. he would probably have barely made it to his 20s. keep all people who have this in ur prayers!
good video
thekook33 1 week ago
my daughter has cf she is now 4 months
bellsarah52 1 month ago
Hi . This is really hard for me because I had a daughter when I was 18 and I was so immature. My little baby was a cystic fibrosis newborn. I knew nothing and doctors knew little but were hoping to learn. Janelle(my daughter) was so severly affected (lungs and digestive) So Sorry I do not think I can say much more. I just hope to god that child of mine can forgive me for all the horrible mistakes I made
Llewellan 1 month ago
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Please Check out my video it is super important! Breathe Easy :)
glitsNglamxoxo 1 month ago
i have cf two of my freind hade it both died when i was in the hospital i am now thirteen and i am i the epic study and i am one of the top 10 kid who have it in dallas texas area adn i hop all the kid who have it will do better than the curently are
DESSERTGECKO 2 months ago
@DESSERTGECKO
Hi i am doing a power point and floor speach for my human anatomy class on cystic fibrosis.I was wondering if you have any comments or anything you could share with me. It is such a terrible disease and i hope you are doing well.
tenn1sfr3ak 2 months ago
I have cystic fibrosis and I just want to let you know that this is one of the most inspiring videos I have ever seen. I love it and I promise that I am probably half the views :)
CFtoria 3 months ago
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In September 2012, 4 friends will try to defy all odds in a unique cycling challenge. Cycling from Hastings to Barcelona and Back! 2000 Miles, 7 days, Non-Stop! All to raise £50.000 for Cystic Fibrosis Trust.
Please visit: Barcelona Boomerang. com Thankyou!
frellaification 3 months ago
Comment removed
frellaification 3 months ago
NOTE: THAT WAS NOT A HATE COMMENT (Just in case it came out as one!)
Abominatrix650 3 months ago
I'm currently doing an assignment on degenerative diseases and even though this video didn't increase my knowledge on it, I will still say "Good luck to all you people with CF out there! Your time will come and the disease will be purged!"
Abominatrix650 3 months ago
I'm 19. I have cystic fibrosis.
antal110 4 months ago
I'm 29 and have cf and cf related diabetes. my lung fuction is only 30%
spaclacie 6 months ago
my brother was born with cf. he wasnt diagnosed until he was 10 months old. he died 2 weeks later. my sister was born 2 years later, and she was diagnosed with cf as soon as she was born. my mother saved her life by being strict with her treatments and medication. she is now 28. the road hasnt been easy, but she has still got alot of fight left in her! i plan to make it my job to help find a cure....FAST!!! God bless you all x
TanandDamo 6 months ago
Five people born without a heart.
MmeDesgranges 8 months ago
To all the people that has CF, I hope you all live long! Keep faith in you! dont give up and fight! :)
321beth321 8 months ago
I am fifteen years old and I was diagnosed at two months old. CF has ruined my life but thanks to the amazing friends I have, I am able to make it through every day
cocoalovercj 9 months ago
i just lost my best friend to CF he just turned 26, he is actually the guy that is in a lot of my videos (chris) he died 3.3.2011 @ 1:45 PM RIP chris ...love ya and miss ya bestie
chaoticXdisaster 10 months ago
Well that was beautiful. It gave me chills. I'm 13 and have CF but its not too bad right now.. I just escaped from the hospital after 2 weeks! I was diagnosed at seven and was told i was going to die that day and here i am today!!!
CFTori 11 months ago
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This video is truly breathe-taking. I myself am I sufferer, although I consider myself mightily lucky. I've just had a lung function to which I had an FEV1 of 101%, I don't know what you guys measure it in but that's the highest I've ever achieved. Which is more than could be said for my sister. Who is still fighting for her life due to not being diagnosed early enough. She's never gave up. And she's the inspiration for me. Don't ever give up people. The cure could be just around the corner
1888TheBhoy 11 months ago
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1888TheBhoy 11 months ago
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1888TheBhoy 11 months ago
how could 5 people honestly dislike this? really?
this is so sad i hope they find a cure for cf. i am personally not affected but i know this girl who has a brother constantly in the hospital and in so much pain; missing childhood. :/
menimexxmakeup 11 months ago
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I made a video that is on the front page of my channel called 'ditalydo' that is of my nine year OLD WITH C/F SHE OIS VERY EXCITED TO FIND THAT THERE ARE OTHERS ON HERE WITH HER DISEASE SHE HAS NEVER KNOWN ANYONE WITH IT SO PLZ SUBSCRIBE TO ME SO SHE CAN CONVERSE WITH YOU ALL OR AT LEAST ENJOY YOUR VIDEOS THANK YOU...DEANNA AND SADIE AKA (SARAH)
ditalydo 11 months ago
we watched this in assembly, it made me cry and i never usually cry at anything
tridentsplashxx 1 year ago
Only part of your story is accurate, It does not change the face that the foundation and Scanipharm are decietful and worse
hopeandwork 1 year ago
my friend showed me this video and i cant stop watching it!
vampslovelambs 1 year ago
lost a friend last week. he was a like a little brother to me. he was only 8 and had cf. i have cf as well
1moe7 1 year ago
I cried so hard, my boyfriend has CF and is currently in the hospital right now, He better never give up on the fight, I will help him fight, I will help him live. Everyone with CF I am sorry for you all it is a terrible disease for you and your family and everyone who loves you, Hold on please, for everyones sake, but mostly hold on for you. :) Hold on all of you, and R.I.P for anyone who has passed away. :(
XxRandomVideosRockXx 1 year ago 6
@XxRandomVideosRockXx i will pray for him
TheItalianbabes 1 year ago
@TheItalianbabes Thank you. =3 <3
XxRandomVideosRockXx 1 year ago
@XxRandomVideosRockXx your welcomee:D and sry bout before i said lol because sometimes this> =3 means a guys man part D:
TheItalianbabes 1 year ago
@TheItalianbabes Haha no problem. =D
XxRandomVideosRockXx 1 year ago
@XxRandomVideosRockXx lol :D
TheItalianbabes 1 year ago
@TheItalianbabes :)
TheItalianbabes 1 year ago
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@TheItalianbabes Haha no problem. =D
XxRandomVideosRockXx 1 year ago
@XxRandomVideosRockXx What can I say darling, God I am so sorry - you posted over 1 year ago- what now?
Llewellan 1 month ago
I was diagnosed at the age of 2 years, no one really knew waht was wrong with me I slept all day, today Im 19 years old proved the doctor wrong he was convinced that I wouldnt see my 5th birthday, Im feeling like nothing in the world is wrong I got a lung function of 70%+ and yet I dont go to the doctor for any treatment anymore I believe that I cured myself by simply believing in the Lord above and living life like every other normal person.
You can do it to you just have to believ in yourself
JessicaDB90 1 year ago
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i have cf im now 21 and i was diagnised at 3 months and living with this is hard im in the hospital as of now ive been here for allmost 3 weeks its hard for me i wish i could breathe
allso wish my blood suger would stay normal but im not worried about me i wish they would find the cure for the kids i remeber how hard it was for me and no one that young should go through that id rather them cure are future
TheGuitarking01 1 year ago
i have cf im now 21 and i was diagnised at 3 months and living with this is hard im in the hospital as of now ive been here for allmost 3 weeks its hard for me i wish i could breathe
allso wish my blood suger would stay normal but im not worried about me i wish they would find the cure for the kids i remeber how hard it was for me and no one that young should go through that id rather them cure are future
TheGuitarking01 1 year ago
I have two kids with cf and they are absolutely precious. I know that God knows the very number of their hairs and prayer changes things. Seek the Lord daily for guidance and strength and He shall be there. He will never leave you or forsake you. That's the Gospel Truth.
crossdaily1 1 year ago
To my daughter Sarah Ann, I love you Angel
gjf720 1 year ago
In memory of Sarah Ann Feinstein loved very much. Passed at Christmas 2002 at 21
gjf720 1 year ago
i was diagnosed at 3. it has been a struggle but i didnt really notice it as a problem until i started high school. trying to balance treatments, friends, school, and other stuff go very complicated. and because i chose other stuff over treatments sometimes my numbers are in the high 20's. now im realizing how important it is.
ryryryryhas 1 year ago
i was diagnosed at 3 months...i had problems from day 1...the doctors where i lived/ and still live ddnt believe my mom when she told them, hey somethongs wrong she eats every hour of every day and she has gained one pound...she finally went somewhere an hour from where i live, and immediatley did a sweat test to see if i had it and obviously i did..i am now 17 and my lung funtion is at 90% and im so grateful to be alive considering all ive been through,,,i hope and wish and pray for a cure soon
Rainee13 1 year ago
@Rainee13 hello, I am Jena. I am determined to find a cure just as much as you are. my cousin had CF. he is 8. & mu hero. I hope youe live your life to the fullest. follow your dreams, please. <3
jenalareebaby 1 year ago
As a computational scientist and CF researcher, I would first say that there will be no cure for CF until we learn how to compute complex biomolecular systems. No ability to compute, no cure, period. But I have good news - I have made a fundamental discovery about how these computations can be done. To learn more visit my channel, you will find links to my website there. To help in this effort, simply link to me. Together we can beat this disease.
bonnarj7 1 year ago
im 29 and have been diagnosed with CF from the age of 1. the one thing i can say to people here is dont let CF get u dwn, its something we must control and put up with but never let it dictate life!! those days when the lungs feel free, live life to the full, enjoy it! one thing ive noticed bout CF sufferers is that we all have the same smile on our faces, never let anything get us down! Im running a marathon in dublin in oct, if i can do it so can u!! Keep fighting and never give up!!!!
alanmooney147 1 year ago
Hi
I have CF. I was diagnosed at 3 years old.
I'm 19 now. 20 In december. My lung function is 120%
If anyone would like to talk please send me a msg :) x
NatalieGlendenning 1 year ago
I'm 20 and was born with CF. Then diagnosed at the age of 13 with the Diabetes that goes with it. I take insulin shots, breathing treatments, and several other medications everyday. When I go out places, I cough and use tissues all the time. Some people give strange looks or may try to stay away. They don't understand what CF is and what it forces us to go through. The age expectancy of those with these diseases are around 35-40. Everyday it's a struggle just to try to stay healthy enough.
Kaytran97 1 year ago
ive gto cystic fibrosis
sjinhay11 2 years ago
I have CFRD (cf related diabetes) and am looking for a tablet instead of insulin - do you have any suggestions? I would be very thankfull if you helped me! - I'm 14
wasupitswill 2 years ago
skullsforkorne... i now understand that u are a hateful internet mongrel??!! that explains the past comment!! im sure u must lead a very forfilled life posting hurtful remarks... i just hope nobody takes u seriously!! there will be a cure for cf oneday.... 4 ur hateful attitude towards life there will never ever be one.... with luv frm a cystic fibrosis sufferer who will never give up!!!!
anabella295 2 years ago
I LOVE THIS!!!!! they should make this into a comertial!!!!!!!!!!!!
AngelGirlCFF 2 years ago
You sad, pathetic little person (Skulls) - you obviously are such an ignorant individual and if your comments are to cause provacation then suggest you go elsewhere. You have too much time on your hands and, for your information, there WILL be a cure found!! Now, jog on and get a life you saddo.
minx8370 2 years ago
learn to english you dumb cunt
SkullsforKhorne 2 years ago
I am English you thicko - what's your excuse. The only thing you are superior to is an amoeba - you arsehole.
minx8370 2 years ago
@SkullsforKhorne Learn to English? I absolutely love the irony in your comment. I hope in the year since you've posted this, you've learned English, matured, and actually gotten love from your parents. Good day to you sir, and quit being so hateful.
TomAndJerry87 5 months ago
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Haha all you disease ridden fucks are going to die and there is nothing you can do about it
Have fun being utterly subpar to people like me
There will never be a cure
SkullsforKhorne 2 years ago
haha u sound like a lovely person... truly u do... i have cf... and if i am "subpar" to people like u thank god 4 that!!! do u really have such an unispiring awful life that u feel the need 2 make such an awful comment??!! ur friends are very lucky 2 have someone like u... im sure ur a total ray of sunshine 4 them??!! mate, i feel sorry 4u.... i have cf and im proud of it.... ur comments make me laugh, u are small minded and obviously not very bright!! good luck with that, u seem like u need it
anabella295 2 years ago 3
@SkullsforKhorne you sad little man... whats your life like? not get much attention as a kid? sort it out.
robac7 2 years ago
@SkullsforKhorne Do you like to make people cry? I've had CF my entire life and will live a more successful life than you will ever dream to have if you have an attitude like that. I'm sorry if you were ignored as a child, but please take it out on us.
TomAndJerry87 1 year ago
Im 18, had cf from day one.... still going!!!
dont smoke... i smoked for 6 months and brought my lung function down 20%, only advise i can give....DONT smoke
Crazyjosha 2 years ago
i dont want to give up until cf means cure found....
Demy81726354 2 years ago
Can you believe i have to take enzymes and supplements and vitamins and steroids and alot of other pills = 12 pills every day + treatments.
Demy81726354 2 years ago
im eleven I have CF, i had to get my lung removed, im doing a nebulizer treatment right now
Demy81726354 2 years ago
stay strong
mscaro881 2 years ago
ive got cf , diagnosed at 1 , im 15 now
cnreidy 2 years ago
I dint have CF but looking at your comments made my day... DONT EVER GIVE UP
jjisinthehouse007 2 years ago
i was diagnosed at 6 months...but had problems from day 1...doctors wouldn't believe my parents and said that i was just a small baby who had really disgusting nappies and cried a lot lol...now i'm 18 and my cf is better than it has been but my lung function is only 40%...so everyday the one wish i have...is to be able to breathe...and i wonder what it's like to be able to smell fresh air and go up the stairs without having a coughing fit....but i am hopeful of a cure...i just hope its here soon
aislecheeks 2 years ago 22
@aislecheeks i was diagnosed when i was four. i was in foster homes up until that age, so no one really cared. my adoptive mom knew what it was and the doctors didnt believe until it was the last result. my PFTs are in the 70-90 percentile. i hope you get better, and i hope i never get there. my one wish is that CF never existed. i want to come home from school and eat without pills, i want to go to bed without treatments, i want to breathe like a normal kid. i want to live. i want to be free.
kaykayeem 1 year ago
@kaykayeem I think the most important thing is to exercise. While I was at school, we had to do PE/Games twice every week. Once I left school, my lung function plumetted, I used to be around 70-90% as well. Tablets and nebulisers don't bother me at all - those are the easy things. What bothers me is hardly sleeping because of overnight oxygen and feeds. Worst thing is the state of my body with a 10 year old port-a-cath old tummy tube hole and new tummy tube below that hole steroid cheeks etc
aislecheeks 1 year ago
@aislecheeks
When I think... I am just too lucky to breathe.
LeadFail 1 year ago
@aislecheeks i am so sorry. i know your probably tired of hearing that but i truly feel horrible that some people cant get a cold and not have to go to the hospital.
mebeRosie 10 months ago
hi sarah, i am also 13 and have cf since i was born. your comment about never giving up made me smile! x
niknac100 2 years ago
it made me cry. Im sarah im 13 years old and i was diagnosed with cf when i was born. i was not suppose to live this long. ive lost a friend to cf her lost her fight. I am not going to lose my fight! i refuse to let cf kill me. tears are rollin down my face rite now. dont ever give up fight!
mewant2win 2 years ago 16
This has been flagged as spam show
hi sarah, i am also 13 and have cf since i was born. your comment about never giving up made me smile! x
niknac100 2 years ago
Hi girl,my name is Gaby,I am from Europe and i lost my sister 10 years ago from CF!Dont ever give up PLEASE!!!!!!!!!!!
gabidiary 2 years ago
@mewant2win Thanks for sharing. Your friend is still with you. Stay strong and all of us CFers will be living long lives soon. Continue to pray and have faith it will be sooner than later. God Bless
sdp0024 1 year ago
@mewant2win DO NOT GIVE UP! I HOPE THE BEST FOR YOU!
ArgosaxPower 8 months ago
Hi my name is Wondy and I am an RT.
I work at a children's hospital,taking care of kid's with cystic fibrosis.
They are all hero's.
cheritaylor6 2 years ago
My name is Cheri Taylor.
Im 14 in 3 weeks.
I was diagnosed with Cystic Fibroses at birth.
I love life and I try to do all my stuff right and good so i can live longer.
I was suppost to pass away when i was six.
For everyone who has it let's show everyone we can do it and be stronge
lot's of love to the kids out there who have it (:
cheritaylor6 2 years ago
i have cf and im 14 i was diagnosed at 2 years old im lucky to be alive, i really hope they find a cure need prayers
rand0m0 2 years ago
my boyfriend has Cystic Fibrosis and he is 15. he was diagnosed with Diabetes in January '09. everyday for him is a struggle and i'm scared to lose him. i hope someday soon we will find a cure for both diseases.
tttayler 2 years ago
this is a awsoem viid i love it when i was born my intestins expoled and i was diginosed with CF although i go though it every day i wish i i could help others to get them though it ! but the thing i hate the most it all the coufing !! sry i kind got off topic but i love you all for going though it with me !!!!! thanks
happyface4ever 2 years ago
im lucky i as diagnosed when i was 2 months old^^ im 14 now and my doctor says im one of the healthest cf kids shes ever seen...but thats only becausr i was diagnosed at such a young age-_-
5ta46az3 2 years ago
@5ta46az3 I'm lucky as well, I was diagnosed when I was born, and only have to do the mimimum CF treatments. I was even taken off a breathing treatment just recently.
TomAndJerry87 1 year ago
@TomAndJerry87 wow really?Thats amazing dude! good for you ^^
5ta46az3 1 year ago
@5ta46az3 thanks, I hope you live a good life
TomAndJerry87 1 year ago
This is very good video. Brought tears to my eyes, because I can relate to those wishes. I was diagnosed when I was 15 with CF. I'm 18 now and everyday is a battle. I'm scheduled for a lung transplant next year and I'm looking forward to it! Wonderful video and I pray for your friend's Daughter.
Thanks for sharing.
JasminePinder 2 years ago
good luck with your lung transplant... i will be praying for you!
Phillyfan4192 2 years ago
my best friend passed away 7 months ago from cf. without a doubt the hardest time in my life. seeing what he went through, i pray for everyone with cf and pray for a cure.
Phillyfan4192 2 years ago
im 14, and i also have cf, amazing video.
xoxoandrea25 2 years ago
=( I was tested for cf, cause I'm pregnant, and today they told me I am positive..don't know if my husband is positive or negative....I'm scared to pass it onto my child!!
alyeLove 2 years ago
i doubt you husband will have cf too. the only way your child can have it is if you erm.."made the baby" with another CFer. i have it and i'm 13! diagnosed at 7 months old
1moe7 2 years ago
Comment removed
mikey3182 2 years ago
Google: Lung Transplant Bradenton, and you'll find an inspiring story about a CFer who had a double lung transplant.
mikey3182 2 years ago
this is amazing. i have a close friend with cf, and i pray everyday we find a cure!
kendall3521 2 years ago
im 14 and i have cf!! :) that was an amazing video dont we all just wish it were like that in real life :(
scenechick6195 2 years ago
amen to that!
1moe7 2 years ago
my close friend had cf. he was like a brother to me. he passed away this last year. every day a pray for a cure so no one else has to go throught what he did.. DONATE!! DONATE!! DONATE!!
Phillyfan4192 2 years ago
I feel your pain! My best friend passed away from CF in 2007.
Please help!!
Babegirlcass 2 years ago
i thought this was a commercial.
it is amazing.
i have cf and am almost 29.
every time i see this it makes me cry..but gives me hope.
herbigbrowneyes 2 years ago
yeah , never give up on yourself.
Sophaayx 2 years ago
I really like this song. Who is it by?
TidusILU 2 years ago
coldplay. cant remember the song name..
Sophaayx 2 years ago
thanks
TidusILU 2 years ago
i have cystic fibrosis and i am 11
brillint video
discojayjay 2 years ago
Hey, Thanks for uploading this video. It's beautifull. My sister is 24 now, and she has CF.
Xxx
Marielle5889 2 years ago
Si eres latino o el español es tu primera lengua haz lo siguiente en el orden que aparece y quedaras asombrado:
1.) Lee lo escrito anteriormente una vez mas.
2.) Pega este comentario en 4 videos mas.
3.) Cierra los ojos por 4 o 7 segundos.
4.) Mira hacia atras
Monochalao 2 years ago
aww
GotYouOwned 2 years ago
i have cf and am 15... and can i say this video is great well done but if only the wish was true :( and it would be great 2 if it come on tv ever were to let ppl knw wt cf is and go and look it up (PLEASE PLEASE DONATE YOUR ORGAN'S :) AND MAKE THE WORLD A BETTER PLACE) :)
sjdjr04 2 years ago
I am 22 and have CF. That's a really emotional and beautiful video. I hope it shows on TV there.
vamp666babe 2 years ago
my sister died of cystic fibrosis 6 years ago...that movie was really nice.
haleylynnhaverstock 2 years ago
Cystic fibrosis. I worked as a teacher in a childrens hospital here in Canada and nothing, nothing bothered me more that observing what kids with cf have to contend with. A moving video.
Trakee1 2 years ago
I don't know anyone personally with CF, how ever the song 65 roses by the wolverines is so touching it brings a tear to the eye every time I hear it, so I wanted to learn more, to those suffering I wish you all a long and healthy life, and here's hoping for a cure soon...
hattownnt 2 years ago 2
i have cystic fibrosis.. this is really nice
kristyx28 2 years ago
hi, great video!
I'm not advertising, but please do subscribe to our channel.
We are two people who are going to be raising a lot of money for the cystic fibrosis trust over the next few months our first challenge is walking 20 miles on our own dressed as 118 118 lol.
Such a sweet video (:
CFfundraisers 2 years ago
Ty for that nice video and raising awareness
Gotenks112 2 years ago
this is really good
karofinne 2 years ago
nice vid but would be nice if it said more about how many are affected maybe...my sister died of cf
S888999333 2 years ago
i have cf, but i dont realize i have it unless i start a "coughing fit". i love to run around all day and play. This video is touching
seg1102 2 years ago
Wow.. i Have a daughter with cf and im a tuff guy.. but you got me im crying like a baby.. great video.. it puts perspective on life.....
whatwap 2 years ago 2
OMG. Thankyou for sharing the awarness. No one I know, knows about CF except when I tell them.
Hopefully they can find a cure.
I have CF btw :)
HollyMyGolly 2 years ago
This is an excellent video. I used it in a school project about Cystic Fibrosis. I have two cousins with the disease so i learn as much as I can.
jskelt02 2 years ago
nice video, my wife loster brother to cf, and we were afraid my son had it, Thanks for posting this video,hope all is well with the daughter
jacobsdad32003 2 years ago
omg, i absolutley love this video soo much! i have cf too. thanks for bringing awareness (:
emee65 2 years ago
thats soooo sweeet!! i hv CF
TheBehBehKKShow 2 years ago
this is a good video
pho9u 2 years ago
This comment has received too many negative votes show
eww gross, sick little kids. My roomate has cystic fibrosis and he gets to neb, vest, and takes 42 pills a day while I sit around and do nothing.
chuckerdiezel 2 years ago
I dont wanna hear about dead people with cystic fibrosis because i have it. it scares me listening to this. im only 11! lol
972kittycat 2 years ago
hey dont worry im older im doing great.
cannock16 2 years ago
He is still alive today, holding down 2 jobs and is showing no way of detoriation, i believe that it was the fact that he got out there and had to work for hiself that he survived with CF
He is one of the oldest people in the UK with CF,
This video is nice, shows thought.
richies000 2 years ago
my uncle was born 50 years ago, he kept on spluttering and sometimes blood came up, and doctors were convinced it was because he was smoking, nobody knew what was wrong with him. He wasn't smoking but the Dr's didn't believe him.
Becuase no-one knew what was wrong with him, he left school at 16 and went straight into work, he was an engineer and was even accepted into the RAF.
It was only when he was in hospital for something completely different when they found out what was wrong with him
richies000 2 years ago
Perfect video....I support the cause...
I have lost too many young beautiful friends to this atrocity. The video was very touching and the song was....perfect. Thank you for bringing awareness to C.F.
~~Jules, R.N.
julie1300 2 years ago
this video is amazing. my cousin Jenny just passed away from CF. She wasn't supose to live past 8. She died at the age of 19.
carismob 2 years ago
well done for putting up video, cystic fibrosis needs all help it can get
spiritofvoice 2 years ago
i have cf and i smoke and take drugs
patcribbon 2 years ago
This was such a cute video. My friend just passed away from Cystic Fibrosis.
dodobird93 2 years ago 2
I'm so sorry to hear that. :(
My boyfriend has CF.
taqu 2 years ago
makes things alot more comfortable if people like you are there to help.
cannock16 2 years ago
makes me appreciate brandon more:(
IvetteTheImaginary 2 years ago 2
this video is AMAZING.
r.i.p. Gregory <3
bublaikenchal23 2 years ago 2
Well now i cried, damnit someone made my cry again.
Well i will give you and those who made this move a thumb up.
This was a good movie.
kimzy1987 2 years ago 2
im not gonna pretend like i understand what you're going through, because I dont
but wishing isnt going to find a cure
lots of money, research, and a miracle will.
tinkerbelljyt101 2 years ago
beautiful video.... i am 14 and i have cf. i am very healthy for a person with cf. keep the dream of finding a cure alive!!!
GreenDayRocks89 2 years ago
Comment removed
xEmily1009 2 years ago
yeah i know. wanna be friends?
GreenDayRocks89 2 years ago
hey im 13 and have cf as well. im one of the lucky cf ones as well and hvnt got properly sick yet.
lifelovepeaceGP 2 years ago
This has been flagged as spam show
please do not make fun of this video. anyone
bt9925 3 years ago
this video is so touching
people with cf...
altho ur disease cant go away
i hope youle live life to the full
and be happy every day x
cookiecha9293 3 years ago
Yes, we need generous and brave families to partake in organ donation. I applaud your video! It should be seen on TV so everyone is aware of Cystic Fibrosis. It is not just the letters C F , or 65 Roses, but an actual disease . Bless you!
voomroom88 3 years ago
brilliant vid,my daughter has cf, should be used as a national campaign
scousermarc99 3 years ago
EXCELLENT video..congrats!
lactaki85 3 years ago
my cousin has CF
eventer275 3 years ago
CF really stinks. gotta get used to it though :(
1moe7 3 years ago
Although its horrible there are some silver linings... like being able to completely stuff yourself and not put on weight!
lifelovepeaceGP 3 years ago
Very true! I also like licking the salt on my rist LOL
1moe7 3 years ago
haha me too! its the best thing!
mewant2win 2 years ago
I'm a spanish girl. I have 17 years old and I have Cystic Fibrosis. This video is beauty. Thanks!!
MantisRubia 3 years ago
i have cystic fibrosis.
and it makes me who i am.
i wouldnt change anything about me.
rhiannaashlee2 3 years ago
my boyfriend has CF and this video has inspired me and made me cry.
tttayler 3 years ago
i'n in the hospital right now. i STILL love this vid :)
1moe7 3 years ago
Hey ya`ll im karson im 17 with cystic fybrosis ive acomplished somthing not many childeren with cystic fybrosis can do i have started bullring ive been riding for 3 years now and nothin is inpossible if you take care of yourself and put your mind to what you love to do
kaleishot 3 years ago
A boy at my school had cf. unfortunately in 2008 he died at 16. so sadly it just shows not everyone makes it through this horrible disease.
trinaababesx 3 years ago
I have cf, and I love this video.
It's very sweet..
SarahJosine 3 years ago
I was touched by this video. Love that song by Coldplay... "Fix you"
vea210 3 years ago
My sisters boyfriend and probaly some day husband has cystic fibrosis. Hes actually one of the coolest guys ive ever met. All my sisters friends told her what if some something happens to him how are you going to deal with it. they told her not to date him cause it could be soo hard but she kept goin and stayed with him, i am so glad hes a part of my sisters life. and i hope he stays well for along time its such a scary diesease
BigAL0006 3 years ago
same here man! i'm 13 and i have to go to thwe hospital every few months!!
1moe7 3 years ago
im 13 and have just had had my first admission althou i have the worst type of cf. hope ur ok and get better soon
lifelovepeaceGP 3 years ago
I'm sorry :( you too!
1moe7 3 years ago
believe it or not, I actually know a guy who has CF and he's turning 50 soon!! and another guy he's in his 70's and he has CF! that's how I know I can make it with this disease! sure, i might have to have a lung transplant one day...
but I make the best of my life! have any of you heard of the Sunny Shores Sea Camp???
1moe7 3 years ago 2
My sister has CF, she's 12. I feel so bad for her. The things that poor girl has to go through everyday...
There truly is no God, for how could he intend for people to suffer in this way.
Videos like this make people forget the little problems they get in life that they all complain about, and think of people who really do deserve their thoughts.
willdafergman 3 years ago
horrible disease, doctors thought my brother had it as a newborn. luckily he did not. he would probably have barely made it to his 20s. keep all people who have this in ur prayers!
rgandy23 3 years ago
This made me cry
last year me and mah friends rashed 1000$ for CF because my friend has it.
she is really sick now and I want her to get better fast.
We love you Anna, get well soon.
summerbabbbe 3 years ago
omg i love this video!!
i have cf and it made me cry.
but some day cf will stand for cure found and it can all be over <3
livelaughlove10101 3 years ago
omg my best friend has C.F. and she is struggling right now and that just made me sob like a baby
thx for posting that
wearefun9 3 years ago
my sister died from cf she was 19 she was only supposed to live too 10
crit639yourock 3 years ago