i have been told that DBS does not help for 2ndary dystonia and also been told go ahead and get it done by diff. neurologists. i choose to do the baclofen pump which does not help w pain but scrambles the brain signals saying hey twitch around! i have to up the dose when it gets bad but i just wasn't ready for DBS- not yet.
I care for someone with parkinsons and she kicks her legs and shakes for hours and hours. Her contractions are very bad. Is it normal for her legs to kick? I have taken care of other people with pd and have never seen anything like this.
i hope it all goes fine! i dont know if u believe in god but u are definitely in my prays from now on...
manosTimy 1 year ago
i have been told that DBS does not help for 2ndary dystonia and also been told go ahead and get it done by diff. neurologists. i choose to do the baclofen pump which does not help w pain but scrambles the brain signals saying hey twitch around! i have to up the dose when it gets bad but i just wasn't ready for DBS- not yet.
ShakeyAmy 2 years ago
I care for someone with parkinsons and she kicks her legs and shakes for hours and hours. Her contractions are very bad. Is it normal for her legs to kick? I have taken care of other people with pd and have never seen anything like this.
bentonhunter 2 years ago
will you be getting DBS done? I had it done for ET. Let me know if any questions, am happy to answer/help.
matthewnsea 3 years ago