Multiple Sclerosis: I'm so tired! Fatigue and MS

[AWDESIGNS8]

HOW LONG DID YOU HAVE MS .

[teslagirlM]

@AWDESIGNS8 7 Years this April

[FaveAuntPookie]

It's really too bad that jobs don't understand the fatigue.

[teslagirlM]

@FaveAuntPookie It is true that most jobs don't. Most people don't understand. My job actually does understand slightly. I take a nap during the day, and I just don't give a crap who see me do it. Everyone there knows I have MS and I have brought them literature on fatigue as well. It seemed to help. I am finding when people don't understand, it is my job to find a way to help the understand. There will always be those ignorant ones who think fatigue is laziness, but those are a few people. :)

[telemetry9]

"never compare yourself to others - someone will always be better or worse than you but never the same as."

[nayaz75]

I have SEVERE Fatigue..My most recent medication is adderall and it has been a miracle drug FOR ME..I have tryed provigil and neuvigil and they did not work..I have also tryed excersise etc etc..You name it..But adderall has been great..So you may want to consider that.

[darkness4ever89]

i'm 20 years old and i have just been diagnosed with ms and its kind of a relief to be honest because for the longest while i have been so tired and didnt know why i even thought i had sleep apnea because i would go to bed and have a good night of sleep and still wake up feeling like i havent slept in a week so at least now i know why ;)

[teslagirlM]

Thanks for posting. I know the relief feeling. It is better to know what the reason is for what you feel. I wish you lots of energy!!!

[myshadowside]

hello

merci for your video (does speaking french have a link with MS? it's my 1st language) listn im so so so tired. 48 hr trip jetlag feel. this really made me feel 'not alone' xxx

[teslagirlM]

I like the jetlag analogy. That is just what it feels like. We are not alone!

Merci,

Marlo

xx

ps- wasn't sclerose an plaques discovered by a french doctor? I love french people; always thinking!

[Venom7707]

fatigue is something I usually get I get sick of it and I usually exercise that part it is something that is with MS anyways could you please provide info if I am going in the correct path to get bone marrow stem cells injected to reeduce my symptoms???

[notapplicable66]

I have had MS for over 5 years. For some reason I haven't had much trouble with fatigue at all. Things I do find to help for more energy is to take (Vitamin B-12 Methylcobalamin) and Glutathione. Drink a lot of water because people with MS get dehydrated a lot.

[jesterspace]

I have found that my fatigue is mitigated with a reduced dosage of Provigil, which is a dopamine adjuster originally designed for narcolepsy.

[notapplicable66]

You can get Dopamine in your body by taking DL-Phenylalanine, (which you can get at health food stores) it is a precursor to a amino acid called tyrosine

[kbferro]

Thank you. I hadn't before heard the philosophy that if you give it an inch it'll park a truck, but this makes good sense to me from my experience. While i don't push myself, i try also to ensure it doesn't fully take over my life. I find swimming laps, and the gym, help - and attitude (even if it's fake that day :-). Thanks for the video, KB

[catimini34]

la fatigue ... un bien joli mot français, isn't it ?!

It has been the first chronic trouble of MS for me ... the doctors and my family never understood why ... When I push myself to not take a rest, I'm not only tired by not fine ... That's why I need to find a job that let me have my own hours of working : between 12 AM to 4 P it's not a good moment for me to be active ... I need to be alone some times, to not be always in sollicitations (I mean to have to concentrate on something)

[teslagirlM]

Merci de votre réponse. Je comprends.

Are you looking for a job where you can work from home? It is hard to concentrate at certain times of the day. I work 3 to 4 days a week. around 4pm, I tell my staff to not ask me any more questions, because I can no longer think! They laugh because they think I am joking.

Je te souhaite la bonne énergie!

Marlo

[qualisarx]

I have RRMS as well. Enjoyed your video and definitely exercise. Good video!

[teslagirlM]

Thank you! Excellent that you exercise. Keep up the fight!

Marlo

[bbcalifornia]

Your videos always seem to come just when they are needed. Hard enough getting my energy to face the workday but now adding the first of the season's holidays - egads. Now that it is cold, I definitely am stiffer and the fewer daylight hours seem to be messing with my internal clock. I totally agree about not giving in - I know once I surrender to a symptom the MS truck will definitely park in that space. Continue to put out these helpful and inspirational messages - keep up the good fight!

[teslagirlM]

thanks! Your post inspires me! Yes, even though I like the cold, the lack of daylight does not help!

Glad you are not surrendering! Well done!

Marlo

[bvaleriea]

Great description of what this thing we live with feels like! I often tell my husband I wish he could just feel it for one hour....it has no "look" and it is so hard for others to understand how a person who slept all night can hardly make coffee. Great suggestions too! Thanks!

Bonnie

[teslagirlM]

Bonnie, thanks for posting. I am glad someone related to it, although I am sorry that you feel this crap feeling. I always tell people who wake up refreshed that they don't know how lucky they are!

I also should have mentioned doing light stretches in the morning, like touching your fingers to your toes (or knees in my case! LOL!)

Wishing you good energy!

Marlo