in 20 yrs old and i also have HLHS. it was performed by Dr. Pariki at the Rilly childrens hospital in 1991. and moved to the peyton manning children's hospital at st. vincent hospital
Look at my Channel, my baby sister has this syndrom! look at the video Living with half a heart! I need suporters and likes, so she can be discovered! PLEASE i just did this today. Like this so it can be seen! PLEASE just like my videos subscribe do whatever to get her discovered!
I am a mom of a 11year old son HLHS and we did not find out till he was 5 days old when he almost died in my arms and to c him now he is a true angel sent to us.It can be done and it is a very hard road but if u just have faith and luv u can make it through.
Continued- So thank you again, this video brought tears to my eyes in the best way possiable. We will pray for Victoria, she is a strong and beautiful young lady. <3<3 My heart is with you all. God Bless!
Thank you for posting this, right now my husband and I are sitting in the waiting room at Children's Medical Center while our baby girl gets her Glenn. I have been terrified by her condition but it has not stopped me from treating her like a normal baby whenever I get the chance. We have not been able to take her home yet and she is 4 months. It has been hard for sure but we have not left her side not once since she entered our lives. Seeing videos like this really gives me hope for her future.
I've been at it 23 years. God is Amazing!!! I've had 4 surgeries, Norwood, Gleen, attempted Fontan, and a Fontan. Fontan was 11 years ago. God is Good!
Dawn42273, thank you for this video, it has put a lot of faith to my heart. My son also was diagnosed with HLHS on 9-22-10, he was born 9-21-10. He also had his first surgery on 9-28-10 (Norwood procedure). thank god and the doctors that operated my son and gave him a greater chance to life. Thank you and God Bless You and your family for this video.
Dawn42273, I thank you for this video, you have put lots of faith in my heart. My son was born in 9-21-10 and diagnosed with HLHS on 9-22-10, he is getting his 8 hour surgery today 9-28-10. Thank you and God Bless You
Dawn42273, I thank you for this video, you have put lots of faith in my heart. My son was born in 9-21-10 and diagnosed with HLHS on 9-22-10, he is getting his 8 hour surgery today 9-28-10. Thank you and God Bless You
Thank you so much for this video, it has put faith in my heart. My son was born 9-21-10 and diagnosed with HLHS on 09-22-10, he is getting his surgery on 9-28-10. this video just made me feel that there is hope for my son to have a normal life. Once again i thank you, God Bless You.
Alinaaskins309...I UNDERSTAND...I can't tell you how many down day's I had..It is an emotional Journey...It is stressful but it WILL GET Better and u will look back and be so thankful!!
i guess i am having one of those down days, my son has hlhs and he will be 2 in oct. u have ups and downs and this is deffinately a down so seeing this and that she is going on ten is amazing. i am still looking for hope and courage and we r two years into this!!god bless you and your family.
Aoifek71...thank u so much for your comment..I am so happy that u have some hope now. My Victoria will be 10 in November and she is doing just perfect. It is certainly tough but you will all come through as a much stronger family and will encourage others too. I pray to GOD for your little girl that she will come through her surgeries healthy and strong!!
Hi Dawn, this clip is so moving and has given me a little boost. We're expecting our first child this December and she too has been diagnoised with hypoplastic left heart syndrome. Victoria looks like a very happy beautiful little girl! Thanks for sharing your journey, it has given me lots of hope :)
My friend mu son have HLHS he make 1st operation in 19/9/2009 and 2nd in 3/3/2010 and we expected the 3rd after 2/3 year but relay i fared about my son can i ask you question are you normal complete that mean you can play and jump and every thisngs please send some pic for you elnagar444@Gmail.com
My daughter has hypoplastic left heart syndrome. She is now 11 about to turn 12. I know it is a long hard journey but I wouldnt have traded this experience for anything in the world. It has made us who we are as a family and as human beings. Like you I feel as if this was God blessing me.
Dear niece Dawn,I was so touched when I saw the video of my niece and I can relate to the heartache you have endured since my granddaughter was born 2 months premature and stopped breathing when I was in the Neonatal ICU visiting her when she was only 4 pounds and one day old! Love,Aunt Linda xo
Our son was born on 02/03/99 with HLHS. He returned to his heavenly home on 10/17/99. God sent us a glimpse of Heaven. I see your video and celebrate with you.
Our son was born on 02/03/99 with HLHS. He returned to his heavenly home on 10/17/99. God sent us a glimpse of Heaven. I see your video and celebrate with you.
My wife and I enjoyed your video. It is a video of hope for us as our son will start his HLHS journey when he arrives (delivers) mid march. Thank you so much. Victoria is beautiful and a picture of hope.
Our son is doing very well right now. The Norwood went well and he needed the Glenn earlier than anticipates (2.5mo) and since then has been doing wonderfully. We continue to be blessed with him and are certain to never take him for granted. His name is Caden. Christmas was a wonderful and emotional time. thank you for asking.
Thank you so much for your video. Our son, born 11/7/08 has HLHS and has had his first surgery. We thank God for His healing power and constant care. Your daughter is beautiful. May God continue to keep her is His care.
Ellen....I am so happy that you appreciated the Video. That is exactly why I did it. So people just starting out could see the outcome after all the surgeries are over!
Victoria, you are a BLESSING to us. What a wonderful video showing what we already know about you. Your a wonderful girl with incredible strength. For those who may not know Victoria, she has a God given strength and we know that He has a great purpose in her life. She is a great example to others who might be going through similar circumstances. She takes everything in stride and doesn't complain. And her parents are strong, loving and a blessing to us as well. We Love you!
It was a joy to witness Victoria's journey once again. She is truly "fearfully and wonderfully made" by a Sovereign God who has ordered all of her steps. Created to glorify God! How amazing!
And He is glorified through you Victoria! You are a miraculous example of God's unending, awesome, amazing grace.
I will always be there for you guys, no matter the distance.. you are not friends you are my family and I love all of you.. I am so blessed that you are in my life!!! you can choose your friends and not your family... God chose you for me!! and I am forever thankful!!!
This is an amazing story of victory and God's grace... I hope this serves as an encouragement to those affected by HLHS... victoria is a dynamic and amazing little girl filled with joy, love and so much spirit!! She emerged victorious as her name describes...She continues to bring joy to all who know her. God Bless you Victoria !! I love you <3 <3 <3
in 20 yrs old and i also have HLHS. it was performed by Dr. Pariki at the Rilly childrens hospital in 1991. and moved to the peyton manning children's hospital at st. vincent hospital
aaronleechristiantro 4 months ago
Look at my Channel, my baby sister has this syndrom! look at the video Living with half a heart! I need suporters and likes, so she can be discovered! PLEASE i just did this today. Like this so it can be seen! PLEASE just like my videos subscribe do whatever to get her discovered!
PikachuLover02 6 months ago
I am a mom of a 11year old son HLHS and we did not find out till he was 5 days old when he almost died in my arms and to c him now he is a true angel sent to us.It can be done and it is a very hard road but if u just have faith and luv u can make it through.
melissal1970 7 months ago
Continued- So thank you again, this video brought tears to my eyes in the best way possiable. We will pray for Victoria, she is a strong and beautiful young lady. <3<3 My heart is with you all. God Bless!
ZowiesMom1 1 year ago
Thank you for posting this, right now my husband and I are sitting in the waiting room at Children's Medical Center while our baby girl gets her Glenn. I have been terrified by her condition but it has not stopped me from treating her like a normal baby whenever I get the chance. We have not been able to take her home yet and she is 4 months. It has been hard for sure but we have not left her side not once since she entered our lives. Seeing videos like this really gives me hope for her future.
ZowiesMom1 1 year ago
I've been at it 23 years. God is Amazing!!! I've had 4 surgeries, Norwood, Gleen, attempted Fontan, and a Fontan. Fontan was 11 years ago. God is Good!
MrBigrobmjca3 1 year ago
Dawn42273, thank you for this video, it has put a lot of faith to my heart. My son also was diagnosed with HLHS on 9-22-10, he was born 9-21-10. He also had his first surgery on 9-28-10 (Norwood procedure). thank god and the doctors that operated my son and gave him a greater chance to life. Thank you and God Bless You and your family for this video.
jgarza421 1 year ago
This has been flagged as spam show
Dawn42273, I thank you for this video, you have put lots of faith in my heart. My son was born in 9-21-10 and diagnosed with HLHS on 9-22-10, he is getting his 8 hour surgery today 9-28-10. Thank you and God Bless You
jgarza42 1 year ago
Dawn42273, I thank you for this video, you have put lots of faith in my heart. My son was born in 9-21-10 and diagnosed with HLHS on 9-22-10, he is getting his 8 hour surgery today 9-28-10. Thank you and God Bless You
jgarza42 1 year ago
Thank you so much for this video, it has put faith in my heart. My son was born 9-21-10 and diagnosed with HLHS on 09-22-10, he is getting his surgery on 9-28-10. this video just made me feel that there is hope for my son to have a normal life. Once again i thank you, God Bless You.
jgarza42 1 year ago
Alinaaskins309...I UNDERSTAND...I can't tell you how many down day's I had..It is an emotional Journey...It is stressful but it WILL GET Better and u will look back and be so thankful!!
Dawn42273 1 year ago
i guess i am having one of those down days, my son has hlhs and he will be 2 in oct. u have ups and downs and this is deffinately a down so seeing this and that she is going on ten is amazing. i am still looking for hope and courage and we r two years into this!!god bless you and your family.
alinaaskins309 1 year ago
Aoifek71...thank u so much for your comment..I am so happy that u have some hope now. My Victoria will be 10 in November and she is doing just perfect. It is certainly tough but you will all come through as a much stronger family and will encourage others too. I pray to GOD for your little girl that she will come through her surgeries healthy and strong!!
Dawn42273 1 year ago
Hi Dawn, this clip is so moving and has given me a little boost. We're expecting our first child this December and she too has been diagnoised with hypoplastic left heart syndrome. Victoria looks like a very happy beautiful little girl! Thanks for sharing your journey, it has given me lots of hope :)
Aoifek71 1 year ago
Cody...how old are U?
Dawn42273 1 year ago
I am 19 years old and I have HLHS, I had the Norwood procedure done in 1991 by Dr. Norwood.
mrkrabz1991 1 year ago
Mrkrabz...wow...that is awesome that Dr. Norwood performed your surgery. How are U?
Dawn42273 1 year ago
This has been flagged as spam show
My friend mu son have HLHS he make 1st operation in 19/9/2009 and 2nd in 3/3/2010 and we expected the 3rd after 2/3 year but relay i fared about my son can i ask you question are you normal complete that mean you can play and jump and every thisngs please send some pic for you elnagar444@Gmail.com
elnagar991 1 year ago
My daughter has hypoplastic left heart syndrome. She is now 11 about to turn 12. I know it is a long hard journey but I wouldnt have traded this experience for anything in the world. It has made us who we are as a family and as human beings. Like you I feel as if this was God blessing me.
ginamendez01 1 year ago
Very touching video Dawn. You have a very beautiful family. God Bless.
moerecsec814 2 years ago
Great !! God bless you Victoria ♥ There sure is hope and you make us believe that just by watching your video ! Thank you!
mamichristie 2 years ago
Victoria god bess you
MrMariarincon 2 years ago
Dear niece Dawn,I was so touched when I saw the video of my niece and I can relate to the heartache you have endured since my granddaughter was born 2 months premature and stopped breathing when I was in the Neonatal ICU visiting her when she was only 4 pounds and one day old! Love,Aunt Linda xo
lindadominos 2 years ago
This has been flagged as spam show
Our son was born on 02/03/99 with HLHS. He returned to his heavenly home on 10/17/99. God sent us a glimpse of Heaven. I see your video and celebrate with you.
smokedjonathan 2 years ago
Our son was born on 02/03/99 with HLHS. He returned to his heavenly home on 10/17/99. God sent us a glimpse of Heaven. I see your video and celebrate with you.
smokedjonathan 2 years ago
smokedjonathan...thank you so much that really touches my heart..that is why we did the video..
Dawn42273 2 years ago
My wife and I enjoyed your video. It is a video of hope for us as our son will start his HLHS journey when he arrives (delivers) mid march. Thank you so much. Victoria is beautiful and a picture of hope.
bikesrunmountains 3 years ago
bikesrunmountains...how is your son? I hope the surgery went really well..your almost there!
Dawn42273 2 years ago
Our son is doing very well right now. The Norwood went well and he needed the Glenn earlier than anticipates (2.5mo) and since then has been doing wonderfully. We continue to be blessed with him and are certain to never take him for granted. His name is Caden. Christmas was a wonderful and emotional time. thank you for asking.
David
bikesrunmountains 2 years ago
Thank you so much for your video. Our son, born 11/7/08 has HLHS and has had his first surgery. We thank God for His healing power and constant care. Your daughter is beautiful. May God continue to keep her is His care.
ellenlazo 3 years ago
Ellen....I am so happy that you appreciated the Video. That is exactly why I did it. So people just starting out could see the outcome after all the surgeries are over!
Dawn42273 3 years ago
Victoria, you are a BLESSING to us. What a wonderful video showing what we already know about you. Your a wonderful girl with incredible strength. For those who may not know Victoria, she has a God given strength and we know that He has a great purpose in her life. She is a great example to others who might be going through similar circumstances. She takes everything in stride and doesn't complain. And her parents are strong, loving and a blessing to us as well. We Love you!
Debs2244 3 years ago
It was a joy to witness Victoria's journey once again. She is truly "fearfully and wonderfully made" by a Sovereign God who has ordered all of her steps. Created to glorify God! How amazing!
And He is glorified through you Victoria! You are a miraculous example of God's unending, awesome, amazing grace.
mariam1270 3 years ago
I will always be there for you guys, no matter the distance.. you are not friends you are my family and I love all of you.. I am so blessed that you are in my life!!! you can choose your friends and not your family... God chose you for me!! and I am forever thankful!!!
dcaronna71 3 years ago
This is an amazing story of victory and God's grace... I hope this serves as an encouragement to those affected by HLHS... victoria is a dynamic and amazing little girl filled with joy, love and so much spirit!! She emerged victorious as her name describes...She continues to bring joy to all who know her. God Bless you Victoria !! I love you <3 <3 <3
dcaronna71 3 years ago