David Cannom, MD and Margaret Aranda-Ferrante, MD ...on Eyewitness LATV NEWS

[jd450lh]

I have met and now personal know both Dr. Margaret Ferrante and Dr. David Cannom. On my first visit, Dr. Cannom diagnosed me with Dysautonomia and this was after years of going from Dr. to Dr. and never getting a diagnosis that I felt was accurate. I now have a name to put to my condition and a doctor who knows how to treat it. Thank you Dr. Cannom and Dr. M., without the help of either of you, I would still be searching for a diagnosis.

[DysautonomiaMD]

@jd450lh : You are the best! Thank you for being willing to try something new, to go boldly out where you never thought you would go, and for just being you. I wish you could come over for Thanksgiving....just buried my dad and not prepared for a Holiday :-). But God is good and little Miss Missy needs to go to bed now, so I have to be a Mommy and get off the computer! LoLv LoLv LoLv LoLv

Your Sister in Christ,

Margaret

[em1270]

Oh wow. So that is what you have. You poor thing. Does that explain the swallow problems too? Thank goodness it will eventually go away.

[DysautonomiaMD]

@em1270 : Good question. The dysphagia swallowing problems are separate, from spinal stenosis (squished spinal cord) requiring surgery. I am getting better, especially if you view old vids compared to now. Thank God for all my friends, especially my YT friends, who have had the most profound effect on my efforts to stay alive. LoLv.

[Amanda0517Melissa]

After seeing over 22 drs in Georgia over a period of a year we were finally able to go to the Mayo Clinic in Rochester, Minnesota (May 2009) where my 16 year old daughter was diagnosed with Dysautonomia/POTS. She missed over half of 10th grade, over half of 11th grade and is now attending her 12th grade year on the part time disability program. Rachel's head doctor in Rochester is Dr. Philip Fischer and had it not been for him and Lord leading us there we still would not know what was wrong!

[mamy101]

I am praying for you dear sister Margaret.Peace to you in the arms of the Lord. Love you,Mary

[DysautonomiaMD]

@azzarbprime : and I thank Evelyn Ramirez for posting it and setting up my YT account....she is to be commended for bringing the outside world into my life. :-)

Thank you!

[DysautonomiaMD]

@MissPeacebabe10 : Yes, I join you in thanking God. :-)

Dysautonomia has come a long way in 1 year....

this is the Year of the Snowball for dysautonomia!

[InvisibleDisability]

We commend Dr. Ferrante for the incredible work she does to help others, in the midst of her own adversity! She is truly a hero to so many living with chronic illness and pain. Thank you, Dr. Ferrante! ~Invisible Disabilities Association InvisibleDisabilities[dot]org

[DysautonomiaMD]

@InvisibleDisability : Thank you so much, but I'm only doing the right thing. God led my life to this point, and I will continue to strive to help others in distress. The pleasure is all mine, and I thank God for the opportunity.

God Bless You, too! And thanks goes to many other people, too.....they all know who they are. They just got the FDA to switch its decision so that midodrine, our sometimes life-saving drug, can still be prescribed in the USA.

Hope to see you in CO, 10-10-2010.

[WorshipGuitar43]

thank you for sharing me

you´re really strong person -

May Jesus Be With You - i pray

and i feel that Jesus will really heal you 100%

He is with us - HALLELUJA

God Bless

Ernesto...

[DysautonomiaMD]

@WorshipGuitar43 : Every so often, some one tells me that God will heal me 100%.

Thank you and I stand with you in agreement! LoLv.

[DysautonomiaMD]

All in the blink of an eye.

[ispylofu]

I am 43 years old now and don't even know till now what's wrong with me. I fainted half of my 43 years of life starting from grade school. Doctor told me to drink 3 cups of coffee everyday. Lol I am active but I know how to control them now. Moderate activities is very important especially after waking up. If I run in a flat surface no problem but if on a steep climb I'm in trouble. 3 days ago I had a new episode. This time in a snow storm in high altitude with the heater on in a car.

[ispylofu]

I am 43 years old now and don't even know till now what's wrong with me. I fainted half of my 43 years of life starting from grade school. Doctor told me to drink 3 cups of coffee everyday. Lol I am active but I know how to control them now. Moderate activities is very important especially after waking up. If I run in a flat surface no problem but if on a steep climb I'm in trouble. 3 days ago I had a new episode. This time in a snow storm in high altitude with the heater on in a car.

[DysautonomiaMD]

@ispylofu : So thankful that such information was able to be of help to you.....and it shows how far we have to go in education. Sounds like you like to travel...but take care of yourself, ok? :-).

[kahley13]

I was wondering where you can buy your book? I am very interested in it and would love to read it!!

[DysautonomiaMD]

@kahley13 : PM me your mailing address & I can send you a free book. I know I'm behind on my mailings, so feel free to PM me and remind me, or do a vid response...that'll wake me up :-)! LoLv.

[FallaciesDetective]

very touching! thank You for your engagement! God knows what we (as sick people) are going through - and he will judge those who treated us unlovingly. Jesus Christ takes it very personal, as his word says:

What you have done to the least of my bretheren,

you have done unto me.

What you have not done to the least of my bretheren,

you have not done unto me.

Grace and Peace from God the father and Jesus Christ, the Lord and head of the earthly body of Christ.

He´s got the whole world...

Michael

[DysautonomiaMD]

@FallaciesDetective : you are right.

I like to pretend I'm a swan...holding my head up high, but paddling like the dickens below the surface of the water.

Thank you for your encouragement. I really needed it today. :=).

LoLv.

[PHANTOMx209y]

We are living in abnormal bodies that do not 'work' like a normal human body. You all hang in there. Tough times for all, but the Lifeboat is here, and all we have to do is stay Together as a Team, and take one day at a time. Love and Hugs to All. You YTers are the greatest set of people Phantom knew existed. Why isn't the rest of the world normal, like you guys are?:-). I just love you all! Margaret

[coolgirlee]

May god bless you!

I hope your symptoms disappear as they appeared doc.

Emma

[DysautonomiaMD]

Thanks so much. I am improving over time, and I can visualize myself completely well again. Random people walk up to me and say, "God is going to heal you 100%"......over and over and over again in the last 3 years....Hoping and Wishing that God Blesses You, Margaret

[PHANTOMx209y]

Hi Emma,

you are so special to me; you have helped me feel like I am both welcomed and befriended to patients with Dysautonomia...usually, by the time people have seem me, there are too many questions to ask (a shame), and too few answers. Having lunch with Grandma tomorrow, my mother, Renee. I love her so much!!! LOLv, Margaret

[sandiecoop1]

It's so wonderful to see people helping people.  Thank you for your caring nature.

[DysautonomiaMD]

@sandiecoop1 : and thank you for the rare character trait of having compassion..so much compassion...for others. Please see my latest vid & maybe you could also help me encourage people to contact their State Medical Board and let's see some more changes :=). LoLv to you and yours. Margaret

[sandiecoop1]

Was recommended to your site and think its great!!! I subscribed.

[DysautonomiaMD]

@sandiecoop1 : I am so grateful that we have met. How are things with your boy?

Wishing you LoLv.

[PHANTOMx209y]

How are you doing Dr.Chica?

Sorry, I just notice someone called you by that name:)

The secretary whom I worked with was Esther and I call her Chica, funny thing happened one day when my own Esther called for the first time to my work place with one Esther speaking to another, they ended up introducing to each other as Esther:)

Chica Esther always called the Deputies as CHICO when they came, and I always corrected her by saying call them HOMIE. continu.

[TheDarksEmpyrean]

God Bless You. Keep Positive.

[DysautonomiaMD]

Thanks for all your care and concern. I look forward to watching you make us laugh for 2010...perhaps the VirtualMedSchool1 needs your talents...hhmm...hhhmmm. Check it out

[DysautonomiaMD]

I intend to call the Peterson's at the WPInstitute....I will post a comment here if/when I get in touch with them, on a scientific basis for dysautonomia.

If I do not comment, I need a reminder PM from someone to help me actually do this, OK? Thanks for being my ears and eyes. Love the Team. All of you. Highest Personal Regards, Dr M

[DysautonomiaMD]

October 29, 2009

If you "YouTube" Search now, "d" "y" "s" now leads to:

"Dysautonomia", "Dysautonomiamd" and "Dysautonomia POTS"...if you keep typing, you also get familial dysautonomia. The computer must be keeping track! Our numbers are growing and/or something NEW has happened! Am I the only one who noticed? I just noticed it today. LOL to all, Dr M

[DysautonomiaMD]

Thanks; I'm just one person and all of you are suffering with me as well. Some of you didn't get a childhood and it is this which really bothers me now: how many children have it and are undiagnosed? Perhaps I should write a Pediatric journal to let them know I think this is more common than they think it is....LOL, Margaret

[jd450lh]

Dr. M,

I found this video to be very fascinating and I most certainly can relate to the symptoms. My doctors say that I was born with MVPS/Dysautonomia and I suffer from the effects of it on a daily basis. Thanks you for providing such pertinent information and I also will keep you in my prayers.

Have a blessed weekend,

Jeff

[DysautonomiaMD]

Thanks; the medical info/background I have is helpful to us. I'm doing everything I can to bring Dysautonomia to the general public, as a 'word'. That is the first thing.

Thanks for your prayers. I also pray for luminescentfeeling, berthold, Lynn, hannah, lil sis, and everyone who finds my site. More and more people are watching and I hope God continues to build His strength in us all. OL, Dr M

[DysautonomiaMD]

I'm so sorry for your plight and hope that researchers can figure this disease out in the nearest future! No more Bodies Hitting the Floor! You take care and I will keep you in my prayers, too. Blessings Abundant to You,  Dr M

[Stacey31233]

I have Postural Orthostatic Tachycardia Syndrome and I am 16, my specialist said I may grow out of it. My main symptom is being dizzy all the time, it's horrible.

Good luck with everything and stay strong.

[squishedlizard]

Aw hun! I am so sorry! I was born with dysautonomia. I know how much it sucks. :( Hang in there chica!

[DysautonomiaMD]

I'm sorry you were born with dysautonomia, as you and so many others have lived from bed and suffered so much agony and frustration. Hang in there. Maybe you could tell us what you do...your favorite thing. Personally, I like breathing fresh outside air. :-) Highest Personal Regards, Dr. M

[DoctorSargeMD]

@DysautonomiaMD was that you in the video?

[DysautonomiaMD]

@DoctorSargeMD: yes. I chopped my hair after that, and became a blonde. No time like the present. :-).

[DysautonomiaMD]

@squishedlizard : I know that there are good support systems out there for Familial Dysautonomia, and I hope you have their national foundation there to help you. xoxo and LoLv!

[DysautonomiaMD]

Dizziness: a yucky thing. I get bouts of being dizzy, and have to look at the road while someone else is driving, so I can anticipate turns to the right, or left, or stops. Sometimes I wear a neck collar just to keep my head still during a drive. Talk to your own doctor (I can't give medical advice) and see if a scopalomine patch could help. It has side effects, but I like the 'not vomiting' help. Ask your doctor; I hope it may help you. Highest Personal Regards, Dr M

[DysautonomiaMD]

Thanks for sharing; I'm so sorry you are so young with this disease; I know many people seem to be getting it in their teens. Perhaps I should write a Pediatrics journal....I think this is news to them.....we need to protect our Children! LOL, Margaret

[DysautonomiaMD]

Just a note to say hello and wish you a Christmas that you can remember. I know things can be hard, but I do send you hugs ((hug))((hug)) and lots of love = LOL, Dr M

[DysautonomiaMD]

@Stacey31233 : and you stay strong, too, my friend! We all need one another to keep up the light! Sending you xoxoxo from Los Angeles! LoLv.

[DysautonomiaMD]

Please let us all take advantage of the Timing of things. I've been in bed and in the hospital for the last 3 years....I just found YouTube..just went from a wheelchair to a walker to a cane. I was supposed to die. I kept on fighting. You are well enough to get on the internet and read! We all need to help one another...now!