I had spinal cord stimbalor put into my back and it got me out of a chair but I also go to pain management and I get Ivs once a month or more and it helps. I go to Tampa general hospital and my dr is Carmen marie Wilson and she's awesome
know what you mean when it comes to pain,i was first diagnost when i was six. iam now 48 now i have learned how to cotroll the pain. more and more tumors have grown,someties i will be walking and WHAM it will very from a lite twiange to where it felt like i got hit by a skeg hammer. keep yur head up kido peace b with you. J.Rad a,k,a. split wig
Hi again to everyone who's watch my show. I'm gonna be having surgery next Wednesday and like some of you know the tumors do grow back hence on why I'm having my 54th surgery because the tumors I had removed have come back. Btw I'm the girl in the video and I'm on my boyfriends YouTube because I don't have one
Wow, this girl is amazing. I have NF, but not this bad. I have a tumor on my optic nerve, which can't be removed. I'm hoping it never causes me trouble.
Ok so For those who've watch the show thank you btw I'm the one in the video I'm using my boyfriends account lol my battle hasn't ended and I'm hoping that ppl out there that have nerofribromatios please email me at jellybean248@yahoo.com there's also a facebook page called the children tumor foundation so I hope that for those who do watch this video don't look at it as a joke because it's not a joke :).
True, Joseph Carey Merrick a.k.a. John Merrick a.k.a., "The Elephant Man" may have had Neurofibromatosis (NF for short). JCM had Proteus Syndrome but we'll never if He also NF. Sadly all the soft tissue was lost during the bombings of London during WWII,
Catie is an amazing young woman who always has a beautiful smile on her face!
miriambenitez 1 week ago
I had spinal cord stimbalor put into my back and it got me out of a chair but I also go to pain management and I get Ivs once a month or more and it helps. I go to Tampa general hospital and my dr is Carmen marie Wilson and she's awesome
ladiesweethang 1 week ago
know what you mean when it comes to pain,i was first diagnost when i was six. iam now 48 now i have learned how to cotroll the pain. more and more tumors have grown,someties i will be walking and WHAM it will very from a lite twiange to where it felt like i got hit by a skeg hammer. keep yur head up kido peace b with you. J.Rad a,k,a. split wig
splitwig1963 2 weeks ago
Hi again to everyone who's watch my show. I'm gonna be having surgery next Wednesday and like some of you know the tumors do grow back hence on why I'm having my 54th surgery because the tumors I had removed have come back. Btw I'm the girl in the video and I'm on my boyfriends YouTube because I don't have one
ladiesweethang 2 weeks ago
I'm the girl in the video I'm signed on my boyfriends account
ladiesweethang 3 weeks ago
i can tell you that they wont stop coming, my dad has had multiple surgeries and they only grow back. he has them all over his body.
colorblindvids 3 weeks ago
Wow, this girl is amazing. I have NF, but not this bad. I have a tumor on my optic nerve, which can't be removed. I'm hoping it never causes me trouble.
RDHJenn1004 1 month ago
@RDHJenn1004 me 2
superrkoman 1 month ago
i have ne 1 also im in pain but im ok ppl tese me make me sad when ppl tese me i fall too
beebee890 1 month ago
Ok so For those who've watch the show thank you btw I'm the one in the video I'm using my boyfriends account lol my battle hasn't ended and I'm hoping that ppl out there that have nerofribromatios please email me at jellybean248@yahoo.com there's also a facebook page called the children tumor foundation so I hope that for those who do watch this video don't look at it as a joke because it's not a joke :).
ladiesweethang 3 months ago
True, Joseph Carey Merrick a.k.a. John Merrick a.k.a., "The Elephant Man" may have had Neurofibromatosis (NF for short). JCM had Proteus Syndrome but we'll never if He also NF. Sadly all the soft tissue was lost during the bombings of London during WWII,
TheKNOTTYMAN 3 months ago