Added: 4 years ago
From: raes519
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  • Anthony's a beautiful child! Kids were not cruel to my son. Unfortunatly your video is all about the tics. What else does anthony have, I have never met anyone that had TS and didn't have an associated disorder. Maybe there are people that do but then, they wouldn't have Tourettes syndrome. I think your anthony is going to be just fine, your accepting of him and I think you'll teach him to be accepting of himself and what he has. I can't help it, this is what I do because I have Tourettes.

  • @BryceVandergriftMOM yes, he also has ADHD and epilepsy.... a neurological triple...

  • Great video on TS Awareness. My son is now going on 16 and was diagnosed with TS when he was around 10. What's frustrating was my wife and I suspected TS all along but the family doc kept saying no. Finally we demanded a psych referral and he was diagnosed shortly afterwards.

    He's a quiet boy and prefers to do solo things. It's astounding how many children are being diagnosed with TS lately and I am convinced a lot of it has to do with the chemically enhanced foods we've ingested for years!

  • i so loved this video many good wishes for u and Anthony my son also ha ts we struggle evey day some days are good ones some are bad but thru it all is is loviing and fun to be with

  • My 9 year old son also has TS. The most important thing I have learned is to see my son - not the TS. I have grown to just tune the tics out and really focus on what my son is trying to tell me. It has taught me patience and understanding. I hope others can see past our children's TS to the wonderful people that they are.

  • I have a 5 1/2 year old with TS. He has a lot of tics. Last year at school he was labeled the wierd kid that jerks his head to one side and barks! That broke my heart. People stare and he knows it. He passes out TS awareness cards to those people and also educates the children in his class about TS. Hes a strong smart boy and I truley believe he will be the cause of his own solution. Just remember kids are tough! Sometimes even moreso then the parents! God bless!

  • this video is awesome!!!

  • Awesome video! My son is 11 with TS. He too has done well on the GFCF diet, but has several other food allergies so his diet is limited right now. I would love to know how the peptizyde has worked for your son as I have just begun to look into enzymes. Have you tried any other treatments for his food allergies like low dose allergen shots? Thank you!!

  • I have not tried allergy shots. I have kept him GFCF, he hasn't had the Peptizyde in quite a while. I had bought some, but since he was only using them on an occasional basis, they would go bad before we used them. Maybe I'll get some more sometime though and use them more often, allowing for more "slips" and see how it goes.

  • This video is so good.... I couldn't imagine but I'm sure you are the strongest mom along with other moms with TS etc. I really like the information included. Good to know

  • I'm glad you have the attitude that it's not a bad thing. I had to keep my tourettes from my mom for 4 years because she didn't want me to go through it like my brother did. When I finally told her she cried and blamed herself, but that only made me angry that she couldn't be happy about what I was. You should be proud of yourself for supporting him.

  • Thank you very much for your nice comment. I'm so sorry you felt you had to hide it from your mom.

  • Wow....I was truly touched!

    I feel like I learned so much from your story~ You are an inspiration and raising awareness will help people to understand~ Way to Go~ Your son is beautiful! God Bless

    Renee

  • This is beautiful! my son is 8 and has tourettes also. Gee it seems there really are alot of kids around with TS, yet it's something that isn't known about as much as other syndromes.

    Like you I also see my son as a lovely young man and I am so privelleged to have him. I think they will actually end up teaching us a thing or two, ha.

  • My 9yr old son has TS and has approx. 12 tics at the moment. We notice that about every 6 months to a year he will develop a new tic and sometimes lose a tic too. He also has lots of other neurological disorders and wad dx 3yrs ago w/ Leukemia. He is a strong little guy and is finally off chemo treamtment. He is not on any meds for his TS and I would like to keep it that way. I think you posting this was amazing and I hope that more ppl start to learn about TS and understand these kids.

  • your son will go through cycles of tics that change all the time...some of them will be funny, and some not, but I hope he can continue to be strong

  • Hi, how are you? I just watched a documentary on TS and saw this video, and I just wanted to say great work, and you have inspired me to start a Tourette Syndrome Awareness Club at school. You are a wonderful and caring mom for being so passionate about this. Have a great day and give Anthony a big hug the next moment you see him! Thanks agian for making this video!

  • That is fantastic! Thanks so much!

  • I too have TS. I have a Two yr old son and watch everyday for the tics to start. If they come, I hope I can be as good a parent, as informed and compassionate as you obviously are. Thank you for sharing your struggles and fears and thank you for the info on the diet. Best wishes and heartfelt hopes of the best for all of you.

  • My name is M. Scott, I am 38 and was diagnosed with TS when I was 10. Thanks for sharing this. It's going to be challenging and, at times, heartbreaking, but with your support and love and some help along the way Anthony will be okay. I have a two yr old son. No tics yet, but if they come I just hope I can be as informed and caring as you seem to be. Thank you for the inspiration and information about the diet!

  • As one who suffers from this condition, I say thank you.

  • Beautiful, this is the story of my son also. We went through the same thing. He was diagnosed at 5 and is now almost 8 and starting to get everything straight. What hard road, there are so many uneducated people out there. My hear goes out to your son and anyone else who has TS or a family member for friend with TS. Keep up the fight!

  • Great vid! He is so cute! I also have TS. I think it's horrible that people always misunderstand it and tease me about it.

  • Thank you for your thoughtful comments and information. My son has Tourette Syndrome as well. He is 16 and we have come a long way in helping him deal with the issues that come with TS. He is a wonderful kid and very bright, as many TS kids are, and we are blessed to have him in our lives. Again, thank you for taking the time to share your story and your little precious son with the rest of the world. Sincerely, Linda

  • hay there,

    i just watched the video on your son and it was amazing. my name is brenna matheson and i am 22 years old and i also have tourette syndrome as well. ive been dealing with it since i was 5 years old..i hafr a very rough childhood growing up and my teen years as well. if it is possiable i would like to get in contact with you via throuh email etc, and we can chat more if you wish.

    Sincerly: Brennan Matheson

  • TS as in transexuals??

  • NO, TS= Tourette Syndrome!

  • I have a tiny bit of tourettes syndrome. (licking my lips, flicking toes, and the hmm noise)

  • I watched your video with a lump in my throat trying not to cry. My 18 year old grandson has developed severe tourette's with copralia over the last 12 months. Hopefuly, the more people learn about tourettes, your child, along with all the others, will be allowed to live without having to explain themselves.

    All the very best to you and Anthony.

  • Lovely video

  • Thank you for educating people about TS. I have never seen anyone or know anyone with TS, but now that I know what it is, I will be more understanding whenever, if ever, I come close to someone with TS.

    This video really shows how much you love your son, and how far are you willing to go out to help him

    God bless you and your family!

    Again, thank you so much. Like they say, "you learn something new everyday" and you just taught me something!

  • I am 15 and i have tourettes syndrom, thank you so much for posting this video! I think that as many people as possible should know about this. Knowing more and being well informed might, just maybe help with the negative portrayal of tourettes and stop videos like "tourettes guy" so thanks!

  • Kali Angel really needs some positive support. Here is a video we made when she had a visit to the Hospital for a breathing test. This 9 year old girl with Tourette Syndrome is working hard to be successful in school and in her career. He dream is to be a famous singer songwriter and she is in vocal music lessons but she needs to raise the funds to continue.

    Brightest Blessings

    Kali Angel's Mom

    (please tell all your friends to stop by Comment, add as Friends & Subscribe)

  • Our son has Tourette Syndrome as well, just diagnosed last January at the age of 8. You're spreading a positive message along with education about TS which is a powerful thing. That's one of the best things we can do as parents of TS kids. And if/when Anthony starts to notice other kids noticing his tics just tell him with a smile that all the cool kids get looked at! :)

  • I have a 9yr old son with TS and also PDD-NOS. It is very important to be there for your son, and get the school to have peer presentations and educate the staff. We have to advocate for our children. Keep the awareness going!!

  • I have the for of tourette's known as caprolalia. I have bad chronic tics and spout words and swear. I also live with epilepsy with tonic clonic and pettite mal seizures that even though i take meds still come on a regular basis. I know what he's going through. Just hang tough kido. i'm 27 and I'm still here and some people will be subhumans, but if you carry yourself well in life the people who matter will be drawn to you and life will be grand.

  • My son has Tourette's Syndrome and it angers and frustartes me that I can't do anything about it. I think as a child I may have had TS as well and possibly passed it on to my son. If people only knew TS is a real disease and these kids don't do it for attention, only then could they not be picked on in school. Great video and perspective!

  • OMG someone knows of Billy Ray and the album in which this was on, Great job1

  • awesome stuff you made me cry. I have TS and I know its hard when you get in school.

  • the bright side is that it's not fatal. and that someday they WILL find a cure for TS and hopefully a cure for aids too.

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