MPSrun
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Uploads (11)
"In Their Words" MPS and ML Awareness Day 2009
"In Their Words" MPS and ML Awareness Day 2009 MPSrun - 417 views - 2 months ago
Please join Ashley and Allison to raise awareness for MPS and ML. A lysosomal storage disorder that is fatal without treatment. Please join them on raising awareness. Wear purple with pride on May 15th and share their wonderful video with everyone you know!

For more Information on MPS and Related disorders visit www.mpssociety.org
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Allison's MPS Awareness video 2009
Allison's MPS Awareness video 2009 MPSrun - 387 views - 2 months ago
MPS Awareness Day 2009. Please join Allison on May 15th to raise awareness for her and all the children affected with MPS and Related disorders. Wear Purple and make a statement! For More information on MPS... Please visit the National MPS Society at www.MPSsociety.org
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Slawson Family Aldurazyme
Slawson Family Aldurazyme MPSrun - 107 views - 10 months ago
Jacob and Samantha Slawson in the News 2003
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Favorites (13)
Chelsey Montgomery Cedar Rapids Washington final edited version
Chelsey Montgomery Cedar Rapids Washington final edited version HopeforLucas - 128 views - 3 months ago
Updated video for the National Volunteer Awards which will take place in May, 2009 in
Washington DC.
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World Rare Disease Day is being held Feb. 28, 2009. Join the fight!
World Rare Disease Day is being held Feb. 28, 2009. Join the fight! Lysosomal - 3,054 views - 6 months ago
A staggering 60 million people worldwide are impacted by rare diseases of different types -- together they make rare disease not really rare. Most families know someone with a "rare disease" or are a caregiver of someone with a rare disease. If you love children and others who suffer from rare disease, please help spread our message to the world -- World Rare Disease Day is being held Feb. 28, 2009. Join the fight!
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Courage on Good Day LA (FOX)
Courage on Good Day LA (FOX) jdigital2002 - 248 views - 5 months ago
Jonathan Formica appears on the FOX morning show "Good Day LA" to talk about the documentary "Courage" and the rare genetic disorder, MPS. You can get more information at www.couragemovie.com
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MPSrun  
Profile
 
Name:
Tami
Channel Views:
1,084
Joined:
March 26, 2008
Last Sign In:
2 days ago
Videos Watched:
3,720
Subscribers:
23
Website:
MPS Society's LA RUN Slideshows
About Me: Mother of 2 beautiful children with MPS (Mucopolysaccharidosis). MPS is one of the over 50 different types of Lysosomal disorders.

I am the Race Director for the National MPS Society's (www.mpssociety.org) LA Run in La Verne CA. We raise funds for research to find a treatment for all children affected by MPS and related disorders.
Please join us in October to help make a difference in a child's life!
WWW.MPSRUN.COM


I posted our MPS Awareness Video! May 15th is MPS Awareness Day! Wear Purple and support our children and raise awareness!!!
Hugs,
Tami
Country:
United States
Recent Activity  
MPSrun rated a video: (1 month ago)
Caitlyn was born July 11th 2003. She was born with a heart defect called Hypoplastic Left Heart Syndrome. 6 days after she was born, she underwent ...   more
 
 
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MPSrun uploaded a new video (2 months ago)
Please join Ashley and Allison to raise awareness for MPS and ML. A lysosomal storage disorder that is fatal without treatment. Please join them...   more
 
Channel Comments (2)
lysofamilyvideos (11 months ago)
We will keep working everyday until there is an end to these disorders!!

You have our word on that !!
Hitchcockfan101 (1 year ago)
thank you so much for ur comment on sexy thing; i was in too good of a mood when i made that lol. Working on a locke/ben vid at the moment, but i'm always glad to get such nice comments! Just wanted to say that from looking at your profile i admire the work u do. I know sorta where ur coming from because my brother John is autistic... I donate to the ASA (autism society of america), but u're really going out there and doing something-- the world needs do-gooders like u!